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jik jik@pacbell 310.821.7080,Fax:310.827.0269

Emergency Registries for Evacuating & / or Assisting People with Disabilities & Activity Limitations - An Effective Tool or False Expectations Association of University Centers on Disabilities (AUCD) Webcast 8/31/09. www.jik.com jik@pacbell.net 310.821.7080,Fax:310.827.0269.

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jik jik@pacbell 310.821.7080,Fax:310.827.0269

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  1. Emergency Registries for Evacuating & / or Assisting People with Disabilities & Activity Limitations - An Effective Tool or False Expectations Association of University Centers on Disabilities (AUCD) Webcast 8/31/09

  2. www.jik.com jik@pacbell.net 310.821.7080,Fax:310.827.0269

  3. June Isaacson Kailes Associate Director jik@pacbell.net 310.821.7080

  4. Cover • Definitions • Types • Owners • Current Guidance • The Great Debate • Community Perceptions • Stakeholders • Anecdotal Information • Evidence • Research Questions • Key Registry Elements • Recommendation • Discussion

  5. Intended Outcomes Deepen your critical thinking about use of registries Proceed cautiously & carefully Advocate for critical & systematic evaluation

  6. Overarching Themes Oversimplification Avoid “centric” thinking Underestimation of resources Over promise of response Lack of evidence

  7. Definitions No standard Vague Ambiguous Catch-all term Contains many assumptions

  8. Avoid Centric Thinking • Earthquake-centric • Ice Strom-centric • Fire-centric • Hurricane-centric

  9. Types of Registries • 911 databases • Emergency warning notification systems • Evacuation assistance • Medical sheltering • Priority restoration of water & power

  10. Types of Registries • Chronic Conditions • Eligibility for services • Resources • Volunteers

  11. Guidance • Registries are mentioned often as a key component & model intervention • No accompanying detailed evidence or guidance

  12. Registries sponsors or owners include: • Local, state, regional, tribal, or federal governments • Community-based organizations (CBOs) & non-governmental organizations (NGOs • Private Contractors

  13. Focus • Registries that identify & directly assist people, of all ages, with disabilities & activity limitations during emergencies.

  14. Great Debate • Question the value of registries • Topic of extreme, passionate, ongoing debate among emergency managers & disability communities.

  15. Stakeholders - disability & senior focused: • home health & health organizations • emergency management professionals • advocates of & for people with disabilities • within the disability communities • on provider & consumer side, • disability-focused emergency management subject matter experts

  16. Perceptions of Intended Users • Appreciation to grave concern • Not about protecting or integrating • Give people a false sense of security • Reinforce learned dependency

  17. Perceptions of Intended Users • Question what happens to the many who do not register • Appear & disappear often due to competing funding & labor force priorities • Question reality & actual ability to carry out the planned response.

  18. Can you count & map where people with disabilities live & work?

  19. Perceptions of Emergency Managers • does not increase response capacity, but focusing on integrating community stakeholders in response does • people may rely more on BEING evacuated than understanding their first “line of defense” should be to have their own evacuation plan

  20. Perceptions of Emergency Managers • integrate disability service providers, both community based organizations & government agencies, in planning & assisting during disasters & recovery

  21. Reading: • Why & How to Include People with Disabilities in Your Emergency Planning Process?  2005 www.jik.com/disaster.html • CLICK on Emergency Managers

  22. Anecdotal Evidence • proven track record • robust funding appears to offer more in depth analysis, staffing, equipment & assistance • existing registry not used during 2007 fires • serious problems in keeping registries current as well as easily & quickly retrieving the data

  23. Lack of Evidence • Scarce & piecemeal research • Nothing that comprehensively examines: • costs • sustainability • effectiveness (successes & failures) • geographic, event specific & scale of event specific issues • details of promising practices

  24. Key Elements: • Sponsors / Owners/ Administrators (community based organizations, government, private sector etc.) • Funding & sustainability • Focus • Hazard specific • Response capacity • Geographic area • Connection with 911, 211, emergency warning notification systems • Identification of population • Disclaimers • Intended users responsibilities • Data security & management • Testing / Drills / After Action Reports

  25. Plans • Evaluating abilities • Support teams • Access to communication & public warning • Supplies & go kits

  26. Recommendations • Be precise • Studies needed to evaluate, document key elements & to assess effectiveness producing the promised outcomes • Proceed cautiously & carefully when endorsing & advocating for their use

  27. More Information • See Handout: Disaster Resources for People with Disabilities, Disability-related Organizations & Emergency Managers

  28. Discussion -- Want to hear from you: • Information re: registries that have been tested (worked, did not work) • Ideas re: sources for research $s • Update or take exception to my comments

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