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Black, Minority Ethnic and Refugee Communities and Dementia

Black, Minority Ethnic and Refugee Communities and Dementia Reflections from Implementing The National Dementia Strategy in London. David Truswell Senior Project Manager. Enfield 18%. Barnet 20%. Harrow 22%. Waltham Forest 4%. Hillingdon 18%. Haringey 10%. Redbridge 17%. Brent

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Black, Minority Ethnic and Refugee Communities and Dementia

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  1. Black, Minority Ethnic and Refugee Communities and Dementia Reflections from Implementing The National Dementia Strategy in London David Truswell Senior Project Manager

  2. Enfield 18% Barnet 20% Harrow 22% Waltham Forest 4% Hillingdon 18% Haringey 10% Redbridge 17% Brent 24% Camden 18% Havering 24% Islington 0% City & Hackney -6% Barking & Dagenham -7% Ealing 8% Westminster 32% Tower Hamlets -2% Newham -1% Hammersmith & Fulham 14% Hounslow 8% Greenwich 12% Southwark -1% Richmond & Twickenham 11% Wandsworth -2% Lambeth -1% Bexley 28% Lewisham 0% Kingston 12% Sutton & Merton 14% Croydon 22% Bromley 21% Healthcare for London Dementia Increase Projections 2005- 2021 The scale of changing dementia care needs across London K & C 54%

  3. Percentage increases in the number of people from black and minority groups with dementia by PCT, 2001 to 2021 Taken from Healthcare for London Dementia Service Guide Appendix1: Needs Assessment (2009)

  4. Financial impact

  5. Why is this a particular concern for black, minority ethnic and refugee (BMER) communities? In London, home to 45% of the total UK black and minority ethnic population, the numbers of those aged 65 and over in the BMER population are expected to triple between 1991 and 2011 Within these broad trends there is projected to be a substantial increase of older people in some BMER populations, notably the Indian and African-Caribbean populations, reflecting historic migration patterns into the capital Lack of awareness as well as social and cultural factors militate against help seeking behaviours in BMER populations, especially for mental health problems There is an expectation of discrimination and/or lack of cultural competence from mental health services by BMER populations There are known predisposing health factors e.g. South Asian and African Caribbean groups are at increased risk of developing vascular dementia - the second most common form of the dementia - due to enhanced levels of diabetes and hypertension Professionals’ assumptions about lifestyle and care giving cultural norms of BMER communities may inhibit help-giving behaviour Use of appropriately standardised diagnostic tools in assessments needs to be considered

  6. Information Community Engagement Stigma Factors affecting service access Access to Services & Support

  7. What would organisations working with dementia in BMER communities like to see? Raise awareness that will advise and inform relevant regional and national bodies Develop an expert reference group for BMER issues and dementia services for London Ensure expertise of BMER communities is recognised and valued Improve clarity on accountability structures for commissioners Improve the role and financial stability of 4th sector organisations (4th Sector = small BMER grassroots groups that struggle to secure funding) Larger 3rd sector organisations need to work more closely with the 4th sector Improve promotion of the work of providers who demonstrate good practice

  8. System wide benefits of improving focus on BMER groups Use of Community Services A & E access Rate of access to Residential Care Use of In-patient Services Carer Use of Health Services

  9. http://www.facebook.com/pages/Resources-for-Dementia-and-Black-Minority-Ethnic-and-Refugee-Communities/122493921131184http://www.facebook.com/pages/Resources-for-Dementia-and-Black-Minority-Ethnic-and-Refugee-Communities/122493921131184 This Facebook Page is to provide a networking and information sharing forum for organisations working to support people from Black, Minority and Refugee communities living with dementia and their carers. 

  10. Dementia & Minority Ethnic Communities and Dementia Awareness Project • Working across 6 London Boroughs – Westminster, Harrow, Hillingdon, Barnet, Brent, Enfield, Islington • In partnership with major 3rd Sector organisations – Dementia UK and Alzheimer's Society • Establishing contacts with local community organisations – Culture Dementia UK and Chinese National Healthy Living Centre • Developing locally sourced information material and exploring multi-media platforms • Deliberately eclectic

  11. Contact Details David Truswell Senior Project Manager, CNWL David.Truswell@nhs.net Mobile: 0779 258 4253 or via Linked-In

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