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Ro Rossiter , Duncan Law, Isobel Fleming

M aking Feedback and Outcomes work for Children and Young People with Learning Disabilities, & their Families & Networks: A Workshop. Ro Rossiter , Duncan Law, Isobel Fleming.

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Ro Rossiter , Duncan Law, Isobel Fleming

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  1. Making Feedback and Outcomes work for Children and Young People with Learning Disabilities, & their Families & Networks:A Workshop Ro Rossiter, Duncan Law, Isobel Fleming

  2. Setting the Context:CYP-IAPT and all that……….Duncan LawClinical Lead for the London and South East CYP-IAPT Learning Collaborative

  3. CAMHS Issues

  4. 76% 80% Percent unknown to any service 70% 60% 50% 35% 40% 30% 20% Adults with depression 5-15 year olds ACCESS: % With anxiety or diagnosable depression not in contact with mental health services Source: Ford et al. (2005) Child & AdolMent Health, 10:2-9 Dean et al., (2004) DoH; McCrone et al., (2008) King’s Fund

  5. Funding • Only 6% of Mental Health funding goes to services aimed at children (Kennedy 2010) • Spending on child mental health continues to be cut – by up to 95% in some local authorities (YoungMinds 2014) • Savings in MH is 1.8% per annum, compared to 1.5% in physical health (DH 2014)

  6. What is the problem – in summary? • CAMHS is under-resourced and yetinvestment in CAMHS can save money across the whole health economy and, more importantly, save years of distress

  7. CAMHS Opportunity?

  8. Opportunities: • CAMHS Select Committee inquiry • Children's Task Force • General Election Threats: • Lack of good Data (c) Duncan Law & Alex Goforth - London & SE CYP-IAPT Learning Collabortive

  9. What is CYP-IAPT?(a reminder?)

  10. Template for appropriate CYP services: key components Improving access & engagement Access

  11. Template for appropriate CYP services: key components Improving access & engagement Access Increasing MH awareness & decreasing stigmatisation Awareness

  12. Template for appropriate CYP services: key components Improving access & engagement Access Increasing MH awareness & decreasing stigmatisation Awareness Participation Enhancing youth, carer and community participation

  13. Template for appropriate CYP services: key components Improving access & engagement Access Increasing MH awareness & decreasing stigmatisation Delivery of evidence-based practices Awareness EBP Participation Enhancing youth, carer and community participation

  14. Template for appropriate CYP services: key components CYP-IAPT Improving outcomes accountability Improving access & engagement Access Accountability Increasing MH awareness & decreasing stigmatisation Delivery of evidence-based practices Awareness EBP Participation Enhancing youth, carer and community participation

  15. CYP-IAPT is a set of principles for Whole Service ‘Transformation’ The CYP-IAPT principles: • Better Evidence Based Practice • Better Collaborative practice - Clinically Meaningful use of feedback tools • Authentic participation of families and Young People who use the service • Rigorous outcomes monitoring Leading to effective and efficient use of resources (c) Duncan Law & Alex Goforth - London & SE CYP-IAPT Learning Collabortive

  16. Feedback & Outcomes Monitoring

  17. Feedback & Outcomes Forms Why bother using them?

  18. Values behind outcomes and feedback • Demonstrate/celebrate/prove: effectiveness of interventions and service • Enhance collaborative practice: • Better service user voice in therapy (& supervision) • Facilitates good clinical practice

  19. Feedback & Outcomes Monitoring Demonstrating success

  20. Demonstrating effectiveness • 90% target • at least two time points with repeated, normed measure • plus, at least one report of Education Employment and Training (EET) • plus, consent http://www.iapt.nhs.uk/silo/files/90.pdf

  21. It’s not (just) about measurement, it’s about a culture of collaboration

  22. Feedback & Outcomes Monitoring Enhancing Collaborative Practice

  23. Evidence Based Transformation Shared Formulation & Agreed Intervention Goals + + YP/Family’s goals preferences, values, and unique context Clinician expertise Research evidence Frueh et al (2012) Evidence-Based Practice in Adult Mental Health. Handbook of Evidence-Based Practice in Clinical Psychology. Published online. Adapted and used with thanks to Peter Fonagy

  24. Goals Based Outcome Tool:What does it look like?

  25. Session Rating Scale (SRS) 26

  26. Resources and Other Information (c) Duncan Law & Alex Goforth - London & SE CYP-IAPT Learning Collabortive

  27. For more information on outcomes and feedback http://www.corc.uk.net/resources/additional-information-about-the-measures/

  28. Other Resources www.cypiapt.org www.corc.uk.net www.myapt.org.uk www.vimeo.com/tag:cyp+iapt www.MindEd.org

  29. Contacts Duncan Law Clinical Lead London & South East CYP-IAPT Learning Collaborative Duncan.law@annafreud.org (c) Duncan Law - London & SE CYP-IAPT Learning Collaborative

  30. Scene setting: feedback and outcomes, principles and practice - CYP-LD, their families and networks Ro Rossiter Consultant Clinical Psychologist/Research Fellow Member CYP-IAPT Outcomes and Evaluation Group

  31. Drivers 1: • Improve collaboration, focus, evaluation and demonstration of effectiveness • Desire to collate practice experience for guidance (clinical psychology and multidisciplinary) • LD Clinical Psychology Faculty had done similar project (adult focused, some themes in common)

  32. Drivers 2 • CYP IAPT begins • Health inequalities and CYP-LD (access &recognition- egSimonoffet al. (2006) only 15% IQ < 70 had a statement of special educational needs, yrs 8-9; Emerson & Baines (2010) lack of recognition of LD in mental health, care, education and criminal justice settings, therefore CYP-LD needs not met -contributes to health inequalities; prevalence of children with Complex Learning Difficulties and Disabilities increasing (Blackburn et al., 2010; DCFS, 2010; Carpenter et al., 2010). “Atypical” development &/or neurodevelopmental disorders- part of broader diversity/equalities agenda (race and culture, socioeconomic status etc.). • Equalities legislation • Passionate practitioners

  33. Journey so far:

  34. Journey so far 1: • 2012- Paper for Children , Young People and their Families Clinical Psychology Faculty Review • 2013 : • CYP-IAPT LD ROMS Management Project (Swindon- Julie Pill and colleagues) • CYP-IAPT Outcomes & Evaluation Group membership • Chapter for ACAMH LD & Challenging Behaviour Briefing

  35. Journey so far 2: • 2014 • Evaluation & Outcome tools survey (Phillips & Sopena) • CYP-LD & families chapter in CYP-IAPT Guide to using outcomes and feedback tools chapter • Today’s workshop What next? • Share experience, plan actions (local, collaboratives, national levels- CYP-IAPT, Child Health egCHUMS project?)

  36. We hope you found this presentation useful Feel free to use all are parts of it to help train other staff in your organisation & to further implement CYP-IAPT If you do use slides please referencethe authors appropriately These slides must not be used in training for commercial gain

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