Team Health Owl

1. Team HealthOwl Michael A. Diefenbach, Ph.D. & Kevin Durr Mount Sinai School of Medicine & notsoldseparately.com LLC

2. Get Empowered. Make smart choices. An app designed to make cancer screening and its decision-making process simple and reliable

4. Background • Early detection is an important component to the Nation’s cancer control efforts. • However: • Not every person benefits from screening • Screening can be distressing • Not all cancer screening procedures reduce Ca mortality • Screening recommendations vary across organizations • Thus, patients need to be • informed about their options • involved in the screening decision process

5. Aims of the App • Provide tailored cancer screening recommendations based on recorded cancer family history and demographic variables • Educate users about screening procedures & cancer prevalance & mortality data by US state • Provides Pros and Cons of screening • Provide decision tool to aid in the decision making process • Testimonials from people who did/did not screen • Provide action plan to assist in identifing physicians, communicating ones decision to provider, provide information about screening for the non-insured • Provide reminders about screening appointments • Offers mental health resources for emotional distress

6. Theoretical Framework • Self-regulation framework guides the development. SLR has these key elements • Cancer relevant expectations, beliefs, including self-efficacy beliefs and beliefs about screening and treatment • Cancer relevant affective states • Perceived competencies • The app will speak to each of these 3 key components, by: • Addressing beliefs and expectations • Providing reassuring messages and resources to cope with distress • Offering detailed action plans

7. Development of the App • A prototype of the app will be shown to members of the target audience via focus groups: • Men and women eligible for prostate and breast cancer screening • Women eligible for cervical cancer screening • We will invite a diverse group of men and women, representing different ages, races, and socio-economic backgrounds. • Focus groups will be transcribed and coded. • App will be revised based on focus group results.

8. Usability Testing of the App • Men and women from target audience will be asked to use the app • Use talk-aloud method (i.e., ask users to describe what they want to do with the app and record their successes and failures while using the app) • Revise app according to changes of usabiity testing • Launch HealthOwl

9. HealthOwl on these Platforms • The app will be available: • on the web • On mobile platforms • iPhone, Android, Blackberry & Windows Phone 7 , and the Web (Internet Explorer, Chrome, Firefox, Safari )

10. Use of public available data • Screening recommendations and screening information will be generated from NCI’s PDQ and Medline+. • Prevelance data by state and county level for all major cancers from http://statecancerprofiles.cancer.gov

11. Two ways to obtain tailoring data • 1) User input answering a few questions about • Family history of cancer • Sex • Age • Race/ethnicity • Insurance • 2) Data input through EPIC. Connect the App via a website to EPIC and relevant data will be transferred into the program.

12. A walk through HealthOwl :The Example of Prostate Cancer

13. Simple User Input of Basic Demographic Variables Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype

14. Add Family History information Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype

15. Summary of Family Historyand Your Screening Options Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype

16. The Prostate Cancer Screen • Prostate Cancer Screen: • Learn facts about prostate cancer • Know Pros and Cons of screening • Rate the importance of Pros & Cons • Receive a summary score of the importance rating • Read patient stories • Find resources for emotional distress • Find a health care provider for screening • Invite a family member to also get screened Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype

17. Prostate Cancer Facts • Here the user finds: • Facts about the prostate and its function • Information about screening procedure and potential side-effects • up-to-date prostate cancer prevelance and mortality data for the user’s state from http://statecancerprofiles.cancer.gov Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype

18. Pros and Cons About Screening • User can read Pros and Cons re prostate cancer screening, e.g.,: • PRO: Prostate screening can help find prostate cancer at an early stage. Then a decision has to be made whether it should be treated or observed. • CON: Researchers have not demonstrated that earlier treatment prolongs or saves lives Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype

19. Help with Decision—Value Clarification • User rates each of the Pros & Cons according to their perceived importance (1=not important; 5=very important) • Users receive a summary score and an interpretative statement about their screening intentions

20. Patient stories • Based on our work with prostate cancer patients, these stories represent aggregated opinions by men about their experience with prostate cancer screening.

21. Coping with Uncertainties • The goal is to provide reassurance about the screening procedure and emotional support to those worried about detecting cancer. Use of GPS to deliver tailored resources • Provide resources: • Cancer Information Service (1-800-4Cancer) • American Cancer Society (Man to man support group) • State-specific resources: • e.g. for New York • www.newyorkprostate.com

22. Finding a doctor • An action plan is an important factor in translating intentions into screening. • This pages helps patients find a physician who would conduct the screening based on their health insurance. • It also provides resources for those who are not insured.

23. Set a reminder for your screening appointment • The unique part of HealthOwl is the ability to set screening appointments as recurring events in the future. • Create reminders to create an appointment and for the screening itself • Prior to a scheduled date a reminder email and/or a text message will be sent to the user.

24. Connecting to family members • Share this app with family members and friends or email or text the link of the HealthOwl site. • This is a good way for family and friends to learn about cancer screening.

25. HealthOwl --Innovation through 4 “Firsts” • Informs patients about their screening options, tailored according to their age, race, gender, and family history of cancer; • Supports and assists patients in their cancer screening decision making through information and value clarification; • Identifies health care providers and facilities; • Provides reminders for current and future screening events.

26. Significance and Impact • Proposed App • Addresses important priorities within the cancer continuum • Theory and evidence-based • Includes comprehensive disease and screening-related information • Lists of cancer related pros and cons • Emotionally reassuring messages and resources for those who are worried • Action plan (find a doctor, regardless of insurance status; get emotional support)

27. HealthOwl Get Empowered. Make smart choices. A proven team Our team has worked together for over 5 years building interactive cancer education and decision aids interventions www.healthowl.org Michael Diefenbach – Team Leader and co-founder Michael.diefenbach@mountsinai.org Kevin Durr – Senior Architect and co-founder Kevin@notss.com MayrBudny – User Interface Director mbudny@notss.com Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype