1 / 19

Partnership Presentation [Company] Presented: [date]

SCALING NEW HEIGHTS. CCFC & You. Partnership Presentation [Company] Presented: [date]. INFLAMMATORY BOWEL DISEASE (IBD) FACTS:

helene
Download Presentation

Partnership Presentation [Company] Presented: [date]

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. SCALING NEW HEIGHTS CCFC&You Partnership Presentation [Company] Presented: [date]

  2. INFLAMMATORY BOWEL DISEASE (IBD) FACTS: Canada has among the highest frequency of people with Crohn’s Disease (CD) and Ulcerative Colitis (UC) in the world, in fact over 200,000 Canadian men, women and children suffer from IBD: IBD Overview Intro to CCFC IBD Research • Every year, over 9,200 Canadians, including children, are diagnosed with IBD. • Onset rates differ across the lifespan: • A clear, single peak in the twenties and then declining for CD. • After a rise in the twenties, a steady rate throughout adulthood for UC. • Approximately 5,000 children are suffering from IBD. • CD is associated with a 47% increased risk of premature death. This includes an increased risk of colorectal cancer. Awareness and Events Opportunities 2008 ESTIMATED IBD PREVALENCE:

  3. The Crohn’s and Colitis Foundation of Canada (CCFC) is a not-for-profit medical research foundation dedicated to finding the cure for IBD. We are a grassroots Foundation started in 1974 by a small group of parents of children with IBD. CCFC has more then 65,000 supporters and includes members in approximately 80 local volunteer groups across Canada, supported by regionally based staff. CCFC is Canada’s major funder of IBD research. To date, CCFC has invested over $61 million in major medical research projects and is one of the world’s leading sources of non-governmental funding of IBD research. Education is a very important part of our mandate. We provide information to patients, their families, health professionals and the public through our education brochures, speakers’ events and our member publications The Journal and GUT Reaction. IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  4. Where do the proceeds come from? IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  5. How does the Foundation spend net fundraising proceeds? IBD Overview Intro to CCFC IBD Research Awareness and Events

  6. CCFC Research Investment • In 2008/09, CCFC funded over 64 research grants, projects and scientist awards and has added new initiatives in areas of knowledge translation and partnerships: • - Grants in Aid of Research (35) • - Research Scientist Awards (4) • - CCFC/CIHR/CAG Fellowship and Transition Awards (8) • - Summer Student Scholarships (12) • - Book Awards (3) • - CDDW Student Research Prizes (2) • - GEM Project (1) • - Economic Burden of Illness (1) IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  7. Economic Burden of Illness In November 2008 CCFC launched “The Burden of IBD in Canada” report which is crucial in outlining the social costs of IBD in more detail than is currently available. • BC has the lowest rate – 331 per 100,000 • NS has the highest rate – 580 per 100,000 • 30% more females than males • Higher rates in urban vs. rural areas GEM Project Funded by CCFC, The Michael J. Howorth Genetic, Environmental and Microbial (GEM) Project is a multi-centre $5.5 million Canadian study investigating the interaction of genetics, environmental and microbial factors on IBD. (www.gemproject.ca) • This is a unique Canadian research study that will for the first time prospectively (looking forward) study a select group of people who are healthy siblings and offspring of individuals diagnosed with Crohn's Disease. These individuals may be at an increased risk of developing Crohn's Disease. IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  8. Volunteer Recruitment Volunteers are the heart and soul of the CCFC. Join our team of volunteers who coordinate events and raise funds for inflammatory bowel disease research. IBD Overview Intro to CCFC • Participate or volunteer at your local Heel ‘n’ Wheel-a-Thon as an individual or a part of a corporate team. • Volunteer for M&M Meat Shops Charity BBQ Day. • Volunteer for ongoing events and activities at each CCFC Chapter. IBD Research Awareness and Events Opportunities

  9. M&M Meat Shops Charity BBQ Day Each year in May, thousands of volunteers and supporters come out to over 460 locations across the country and have a great time serving up and eating at the largest nation-wide BBQ in Canada. Charity BBQ Day is CCFC’s largest fundraising event by a single supporter. Since 1989, the partnership between M&M Meat Shops and CCFC has continued to grow, becoming our best corporate partner and a Platinum Sponsor of CCFC. M&M Meat Shops also supports Heel ‘n’ Wheel-a-Thon and hosts regional golf tournaments. IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  10. Heel ‘n’ Wheel-a-Thon CCFC’s largest and most energetic annual fundraising event which takes place during the month of June. In 2009, more than 6,000 participants cycle, stroll, run or roll in over 80 communities across Canada. Over the past 14 years this pledge-based event has grown from 24 communities and its success is complete due to our dedicated volunteers and participants. ePledge is CCFC’s online pledging system representing about 50% of the total funds raised. www.heelnwheelathon.ca IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  11. NOVEMBER: A Month to “Get Gutsy” • The PR program for Awareness Month included the following elements: • Dignitary Outreach  National Media Relations • Gutsiest Canadian Contest Regional Spokesperson Tour • Objectives: Educate Canadians, raise CCFC’s profile and increase fundraising IBD Overview In 2006, the Honourable Tony Clement, Minister of Health, formally recognized November as Crohn’s and Colitis Awareness Month. Intro to CCFC IBD Research Awareness and Events • 2009 OVERALL RESULTS: • 19 high profile TV and radio stories • 96 print & online media stories = 36 million impressions • More than 63 Letters of Support and Proclamations from key dignitaries including Prime Minister Stephen Harper, Premieres, MP’s, MPP’s and Mayors • Almost 4,000 viewings of CCFC Youtube video Opportunities Recipient of the Hermes Creative Award for 2008 “Get Gutsy Month” campaign.

  12. Patient Forums / Education Symposiums Helps to educate and create awareness among Canadians affected by IBD, their families, friends and the general public. Annually in each of our seven regions: BC/Yukon, Alberta/NWT/Nunavut, Manitoba/Saskatchewan, Ontario, Quebec, Maritimes, Newfoundland & Labrador Includes high calibre speakers addressing today’s most pressing issues in the field of IBD. IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  13. Chapter Initiatives • Signature CCFC Events • Education Events • Galas • Fall Fundraisers • Monthly Chapter Meetings • Third Party Events • Indirect Patient Networking IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  14. Educational Brochures Distributed across Canada by the approximately 80 chapters, in Hello Kits, at symposiums and by request. CCFC currently produces 10 education brochures. Newly Revised: - The Facts About IBD - Nutrition, Diet and IBD - Medication and IBD - Colorectal Cancer and IBD - Surgery and IBD In Development: - Sexuality, Pregnancy and IBD - Traveling with IBD - Parents, Teachers and IBD - Kids and IBD - Living with IBD IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  15. Hello Kits An information package is available for the newly diagnosed containing education brochures and information about CCFC. Over 8,000 brochures on average distributed each year. IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  16. CCFC Publications IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  17. Crohn’s and Colitis Patient Declaration • In late April 2009, CCFC launched the Patient Declaration website: • isupportibd.ca. • CCFC’s objectives for the Declaration is to help improve the quality of life of people living with Inflammatory Bowel Disease (IBD). • The Crohn’s and Colitis Declaration is a call to action for Canadians to recognize the needs of people with IBD, including: IBD Overview Intro to CCFC IBD Research Awareness and Events • Greater awareness and education • Timely and equal access to therapies, • Access to bathroom facilities, and • Support for the further funding of research. • RESULTS TO DATE: • Traditional media = over 2 million impressions • Coverage including web stories = over 83 million impressions • Over 6,100 signatures Opportunities

  18. Future Opportunities • First ever International IBD Day: May 19, 2010 • IBD 2011 Clinical Research Symposium • Streaming Patient Videos • Patient Advocacy • Research findings • Access to therapies • Access to dignitaries/wait time reduction • Bathroom access (i.e. Can’t Wait Card) IBD Overview Intro to CCFC IBD Research Awareness and Events Opportunities

  19. CCFC would like Company to consider partnering to support IBD research. We look forward to discussing the elements of this partnership.

More Related