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C.S. Mott’s Patient & Family Centered Care Program. “Changing a Culture One Story at a Time”. “Facts bring us to knowledge but…. ….stories lead to wisdom.”. ~Rachel Naomi Remen, Author Kitchen Table Wisdom. What is PFCC?. Dignity and Respect Information Sharing Participation
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C.S. Mott’s Patient & Family Centered Care Program “Changing a Culture One Story at a Time”
“Facts bring us to knowledge but…. ….stories lead to wisdom.” ~Rachel Naomi Remen, Author Kitchen Table Wisdom
What is PFCC? • Dignity and Respect • Information Sharing • Participation • Collaboration Source: IFCC
“Being a sick kid sucks. Having a sick child is about the most frightening thing that can happen. Never lose your compassion or empathy. It may be routine to you, but not to the patient.”~ Alicia, Mom of Ben
PFCC Program Participation and Growth • Volunteer Family Advisors: >170 on-line members • 50 on-site members • Staff Participants: >100 2007 2008 2009 Surveys/Materials Review 9 41 32 In-services/meetings 32 51 40 Focus Groups 6 4 2 Unit committees added 4 6 1 Hospital committees adding families - 10 9 Lean committees adding families - - 7 External conference presentations - 2 4
Patient & Family Advisory CouncilInaugural Meeting - January, 2008 Over 4000 hours of effort in Term 1: 2008-2009! Mission Empowerment Engagement Flexibility Fulfillment Inclusiveness Informed Partnership Voice 4000 hours!
Phases of PFCC Program Roll-out • Raise Awareness • Educate Staff and Families • Hold Staff Accountable Continuous improvement of care and processes.