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Consumer Voice

Consumer Voice. Valarie Garza. Definition of Consumer:. For today’s purposes the word Consumer identifies people who have accessed Mental Health/Behavioral Health Services for themselves or a family member .

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Consumer Voice

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  1. Consumer Voice Valarie Garza

  2. Definition of Consumer: For today’s purposes the word Consumer identifies people who have accessed Mental Health/Behavioral Health Services for themselves or a family member. This is my definition, as we do not have a universally accepted definition of consumer.

  3. Our Agency Involvements: MHMR CPS Special Education Juvenile Justice Health and Human Services TRIAD CRCG Private Providers Residential Treatment Centers State Hospital Private Hospitals

  4. Daniel’s Estimated Expenses: • 3 years in Residential Treatment Centers at an average of $200 a day: $219,000 • One hour therapy sessions per week for 8 years at an average $45/session: $28,080 • Psychological Evaluations one per year for 12 years at an average $650 per evaluation:$7800 • Medication management one appointment per month for 12 years at average cost of $60/appointment: $8640 • Psychiatric Hospitalizations average of 6 per year for 12 years average stay 10 days at cost of $5560: $400,320 • One 7 month stay Psychiatric Hospital: $117,600 • Medication average of $400/month: $144,000 • Total: $925,440

  5. Costs not included: • Special Education Services • Juvenile Justice: Incarcerations, Probation Supports • Adult Criminal Justice: Incarcerations, Probation Supports • Lab work • Other evaluations/assessments • Health and Human Services: Basic needs assistance • Informal supports such as mentoring, sibling services, family therapy • CPS: case management, level of care assessments, placements • Lost income to family for time spent meeting Daniel’s needs • Lost family ability to maintain income due to job loss from meeting Daniel’s needs • Duplicated services such as multiple therapies ordered by different agencies at the same time • Duplicated staff efforts and documentation • Long term trauma to family members because of Daniel’s challenges

  6. What did not work: • Duplicative services, documentation, staff efforts & time • RTC placements that prepared Daniel for living in a non-community based environment • Incarcerations • Agency driven services/supports • Deficit based plans of care • Cookie-cutter plans of care • Inflexible service plans/providers

  7. What worked: • Systems Of Care Initiative: • Consumer Driven Services/Supports • Individualized Plan • Strengths based Services/Supports • Community Based Supports • Collaboration across involved systems

  8. Systems of Care Systems of Care is a community collaborative initiative that involves the partnership of, families, youth, agencies and private providers using the wraparound approach to facilitate the success of children, families, and the community.

  9. Components of Systems Of Care • Consumer Driven • Consumer Voice • Strengths based planning • Individualized Plans • Cross agency/provider collaboration • Community Based • Non-traditional and Traditional Supports • Flexibility

  10. Keys to Consumer Partnerships • Motto: “Nothing about us without us” • Consumers actively involved in policy, planning, implementation, and evaluation • Consumer “Team” Composition • Consumer voice & choice • Service delivery using wraparound (strengths-based approach, traditional & non-traditional services, best practices)

  11. Texas Consumer Voice • Key Areas: • Communications and Building a Consumer/Family Member Network • Addressing Recovery • Defining “consumer” “parent” and “family member • Defining “consumer directed” and “family directed” in the state of Texas • Building on current strengths and activities across the state

  12. Recent Consumer Voice Committee Activities • Consumer Voice Conference Call with SAMHSA • Policy Brief Breakfast Presentation • State Consumer Voice Conference Call

  13. Consumer Voice Conference Call with SAMHSA • Valarie shared Texas Consumer Voice Efforts, Strategies and Barriers • Each state identified one strength & one barrier of their Consumer Voice Effort • Washington reported that in September their first Conference on Consumer Voice Networking will take place • New Mexico reported that local community collaboratives were written into statutes signed off on by their governor • Ohio had Consumer Conferences with over 850 attending and used this for information gathering • Oklahoma reported that they have held over 100 Consumer Voice Focus Groups across their state

  14. SAMHSA asked the question “How do we get the right people to the table & who decides who the right people are?” • Group responded “Cast the net wide & try to capture a wide voice Be flexible- with timelines & even criteria for participation- it takes time No set formula” • Several Recommendations were agreed on • States all use same definitions- New Freedom Commission • Consumer Stipends must be done so as not to interfere with consumer benefits • Look at time lines as barriers & use multiple venues for Consumer Input (including technology)

  15. Policy Brief Breakfast Valarie and Vijay Presented together, successful presentation with involved question and answer session that evidenced wide spread interest in TWG efforts

  16. Texas Consumer Voice Call • Mike & Valarie to gather costs information from multiple consumers across the state for inclusion in TWG needs assessment • Tom & Mike to share information on costs of non-treatment • Town Hall Meeting • Regular meetings of Consumer Voice Reps on TWG • Vijay to follow up on agency requests for info on Consumer Voice efforts

  17. Proposed Activities: • Establish a Speaker’s Bureau of Consumer Voices • Town Hall meetings of consumer/family members of all TWG agencies • Establish a consumer/family member advisory group to support the TWG

  18. Town Hall Meeting • TWG partners to identify & support at least 2 Consumers to participate • Scheduling Meeting urgent Needs to happen in August • 4 TWG Consumer Voice Representatives to facilitate meeting & share information • Facilitators to gather information regarding Consumer Needs to bring back to TWG • Discussion of how to connect Consumer Voice efforts across the state & across State Agencies

  19. Connections: • How we can use my family’s experiences and those of other consumers to benefit others by effecting statewide system change • The need not as much for more money but for spending our money more effectively and more efficiently • How we can work together to break down Silos

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