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Health Data in Ireland May 2019

Learn about the key sources of health data in Ireland, including the Hospital In-Patient Enquiry Scheme, Disease Registers, and EUROCAT. Understand how this data is collected, its reliability, and its importance for public health research.

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Health Data in Ireland May 2019

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  1. Health Data in IrelandMay 2019 Dr Claire Buckley, Specialist in Public Health Medicine, HSE Senior Lecturer, School of Public Health, UCC General Practitioner

  2. Health Data • Much data generated • Numerous sources

  3. Health Data • Morbidity • Health information systems • Hospital In-Patient Enquiry Scheme • Computerised Infectious Disease Reporting • Community • Disease registers • EUROCAT • National Surveys • Healthy Ireland

  4. Hospital In-Patient Enquiry

  5. Hospital In-Patient Enquiry • Hospital discharge data • All public hospitals in Ireland

  6. Hospital In-Patient Enquiry • Administrative: • Hospital • Consultant • Length of stay • ICU usage • Type of admission • Type of discharge • Type of ward • Date of operation • Private/public bed usage

  7. Hospital In-Patient Enquiry • Demographic: • Age (DOB) • Gender • Area of residence • Marital status • Medical card status • Health insurer • Clinical: • Up to 29 diagnoses • Up to 20 procedures

  8. Routine Hospital Discharge Data • Potential Research Resource • Validity and Reliability • Validity • extent to which a measurement does what it supposed to do • Reliability • a reliable measurement is one that if repeated a second time will give the same results as it did the first time

  9. Health Atlas • Health Intelligence Unit, HSE • Provides an analytical and display route to a range of datasets including HIPE • Access has to be sought and requested on a person-by-person basis

  10. Computerised Infectious Disease Reporting Health Protection Surveillance Centre

  11. Computerised Infectious Disease Reporting • Surveillance and Control of Infectious Diseases in Ireland • National Infectious Disease Legislation • International requirements

  12. Notify What?

  13. Methods of Notification Email: dph@hse.ie Tel: (021) 4927601

  14. Data Collection Methods

  15. Notify to who? Health Protection Surveillance Centre Departments of Public Health Medical Officers of Health

  16. Community Primary Care Re-imbursement Scheme

  17. Primary Care Re-imbursement Scheme • Responsible for reimbursing GPs, Dentists, Pharmacists, Optometrists/Ophthalmologists and other contractors who provide free or reduced-cost services to the public across a range of community health schemes.

  18. Primary Care Re-imbursement Scheme • Routine pharmacy reports detailing claiming patterns, claims rates and payments.

  19. Primary Care Data

  20. Disease Registers

  21. Disease Registers • Disease or patient registries are collections of secondary data related to patients with a specific diagnosis, condition, or procedure • Congenital Anomaly Registers

  22. Congenital Anomalies • Congenital anomalies (birth defects) are a major cause of infant mortality, childhood morbidity and long-term disability • Occurring in 2-3% of live births and 14-24% of stillbirths • Anencephaly • Spina bifida • Encephalocele

  23. Anencephaly • Absence of a major portion of the brain, skull, and scalp that occurs during embryonic development • Incompatible with life

  24. Spina Bifida • Portion of the spinal cord protrudes through the vertebrae.

  25. Encephalocele • Sac-like protrusion of the brain and the membranes that cover it through openings in the skull

  26. Causes • Folic acid deficiency • Maternal illnesses Infectious diseases (e.g. rubella) • Exposure to certain medicines (e.g. anti-epileptic drugs) • Exposure to recreational drugs (including alcohol and tobacco) • Exposure to certain environmental pollutants

  27. EUROCAT • 3 active regional congenital anomaly registers in Republic of Ireland • Cork & Kerry • Dublin • South East • All three registers are members of EUROCAT, the European network of congenital anomaly registers

  28. National Surveys

  29. Healthy Ireland • Government-led initiative aimed at improving the health and wellbeing of everyone living in Ireland

  30. Healthy Ireland Survey • Annual survey of the health and wellbeing of the population • Up-to-date picture of the nation’s health

  31. Healthy Ireland Survey • Questionnaire • General health • Smoking • Alcohol • Diet and nutrition • Physical activity • Weight management • Social connectedness • Wellbeing • Dementia • Sexual health

  32. Healthy Ireland Survey • Third wave • 7,487 interviews conducted with a representative sample of the population aged 15 and older living in Ireland

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