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NJ’s PTI Family Voices & F2F HIC Parent to Parent FFCMH Chapter

Helpful Resources for Families of CYSHCN. Presented by Diana Autin, Executive Co-Director Statewide Parent Advocacy Network & National Field Co-Coordinator Family Voices. NJ’s PTI Family Voices & F2F HIC Parent to Parent FFCMH Chapter. Helpful Resources: EI & Education.

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NJ’s PTI Family Voices & F2F HIC Parent to Parent FFCMH Chapter

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  1. Helpful Resources for Families of CYSHCN Presented by Diana Autin, Executive Co-DirectorStatewide Parent Advocacy Network &National Field Co-CoordinatorFamily Voices NJ’s PTI Family Voices & F2F HIC Parent to Parent FFCMH Chapter

  2. Helpful Resources: EI & Education • Parent Training & Information Center • Every state has at least one PTI funded by US Department of Education to provide early intervention & special education information & training to parents of infants, toddlers, children & youth with disabilities birth to 26 • Go to www.parentcenternetwork for each state’s PTI

  3. Helpful Resources: Health & Mental Health • Family Voices • Every state has at least one FV State Affiliate Organization or Network member to help families advocate for effective health care & other services for children with special healthcare needs • Go to http://www.familyvoices.org/statesto locate the Family Voices contact in your state

  4. Helpful Resources:Health & Mental Health • Family to Family Health Information Center • There is an F2F HIC in every state • Go to http://www.familyvoices.org/statesto find the one nearest you • Patient Protection & Affordable Care Act authorizes F2F HICs for the next two years

  5. Helpful Resources: Mental health • Federation of Families for Children’s Mental Health • There is at least one state organization &/or chapter in every state • Go to http://www.ffcmh.org/who-we-are/chapters-state-organizations/

  6. Helpful Resources • Parent to Parent • Almost every state has a statewide parent to parent program connecting families for emotional support & info on resources • Go to http://www.p2pusa.org/ to find your P2P program

  7. Helpful Resources • University Center of Excellence on Developmental Disabilities • Every state has a UCEDD to provide info & professional development on developmental disabilities • Go to http://www.aucd.org/directory/directory.cfm?program=UCEDD for the one nearest you

  8. Helpful Resources • Councils on Developmental Disabilities • Every state has a CDD funded through DD Act to engage in advocacy, capacity building and systemic change activities through the life span • Go to http://www.nacdd.org/pages/councils.htm to find your state CDD

  9. Helpful Resources:Legal representation • Disability Rights/Protection & Advocacy Agency • Every state has a P&A funded through DD Act to advocate & provide legal representation for people with disabilities of all ages • Go to http://www.ndrn.org/to find your state P&A

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