Service User Involvement

1. Service User Involvement Kim Hartley Scotland Policy Officer & Derek Munn Director of Policy and Public Affairs

2. Today… By the end of this session you will have will have: • an understanding of the different levels of service user involvement in all aspects of the speech and language therapy profession • developed a list of strategies and questions to establish service users goals for therapy and views on the service

3. What do we mean by service user involvement? Planning Decision making Evaluating Campaigning

4. Why is it so important? Personal professional development Effective intervention Service improvements Raising awareness

7. N.D.A.M.W.M

8. Never date a man with measles!

9. “No decision about me without me” Patients will receive greater choice and control so that services become more responsive and designed around the patient, rather than the patient having to fit around the services

10. Why you? Good habit to start Equipped with knowledge and skills Great for CV Contribute to the growth of the profession

12. All Ages.....

13. Many client groups.....

14. Involving service users in campaigning Sharing good news stories in the media Attending events and meeting VIPs Being part of a delegation meeting decision makers Designing a speech bubble or other method for sharing their experience and ideas.

15. Jenny’s Journey "Helen Keller said, 'I am only one, but still I am one.  I cannot do everything, but still I can do something,  I will not refuse to do the something I can do'.  Well, I can cycle and I am lucky enough to be able to speak. If that one combination has helped just one person to understand the importance of Speech and Language Therapy then it will have been worth it”

16. Task In small groups think of ways to involve service users in assessment, intervention and service evaluations For 3 client groups Children and young people Adult Significant others

17. Examples of service user involvement from other services

18. NHS Forth Valley Accessible information

20. NHS Fife Forensic Learning Disability Service Training sessions for service users to help them express their views

21. Oxford Health Parent led feedback sessions Changes made based on feedback Engagement of Parents in recruitment/interviewing staff

22. Choose one of these scenarios A: 16yr old boy with cerebral palsy. He has just been given a new AAC device and you are starting therapy to develop his use of this. B: 73yr old male with early stages of dementia is concerned about how he will manage in his home setting C: Wife of a 30yr old man who has had a TBI resulting in cognitive communication impairment. English is a second language for both

23. Making it happen!

24. Confidence: A skill not a gift Use your body Use your time Use your people Use your imagination

25. Who will your service user turn out to be?

26. Any Questions or Suggestions?

27. We hope that you now... • understand the importance of getting service users involvement in planning intervention, evaluating services and raising awareness among the public and with decision makers • Have practical ideas of how to involve your service users in campaigning and intervention planning and evaluation • Have strategies that you can put in place to feel confident in putting those ideas into practice

28. Contact us.... Kim, Country Policy Officer for Scotland kim.hartley@rcslt.org Ele, National Co-ordinator for Local Campaigns ele.buckley@rcslt.org www.rcslt.org

29. References Campaign resources, actions and inspiration: www.givingvoiceuk.org Jenny Marshall’s blog http://bikelog-londonorbust.blogspot.com/ McCormack J, McLeod S, McAllister L, Harrison L. My Speech Problem, Your Listening Problem, and My Frustration: The Experience of Living With Childhood Speech Impairment. Language, Speech, and Hearing Services in Schools October 1, 2010 41: 379-392 Holliday E, Harrison L J and McLeod S (2009). Listening to children with communication impairment talking through their drawings