Key issues: S pecialized or mainstream care?

1. Workshop 4:Persons with disabilities or ethnic background, homeless persons and other vulnerable elderly groups Key issues: Specialized or mainstream care? How to bridge cultural, social and relational needs?

2. Scope of this workshop • active ageing and solidarity between the generations is meant to be for all European citizens and all those who live permanently in the EU • But not all are ‘mainstream’ or are living in a ‘regular’ context.  Does policy need to differentiate for the different target groups: persons with an ethnic background,suffering from poverty, homelessness, mental illness, disability, drug addiction, et cetera?  What does ‘special care’ or ‘adapted care’ in relation to innovation? • What are the guiding principles/normative concepts? E.g ‘ageing in place’, ‘inclusion’, ‘integration’ /… • How to organizecare, given the context of separate care sectors?

3. Example: Mainstream elderly care forageing people with disabilities? (Joris Van Puyenbroeck - University college Brussels)

4. “HOME” ‘ageing in place’ can have manymeanings… there are everal life course 'pathways' Home with parents Home parents with support Respite/ crisis care Family and friends Own home Independent living Home for elderly Daycare and leisure time specialized residential care specialized residential care Home with parents Boarding school specialized residential care

5. Demand for residential care (2010)

6. Study ‘Caringforquality of life’ orderedbyFlemishministry of Welfare (2010) • Europe (in co-operationwith EASPD): • Experts fromelderly care anddisabillity care have different ideas (in terms of ’quality of care’) • On average, European countries put more emphasis on informalcaregiving, duetolack of specializedcare forpeoplewithdisabilities. • The financial means togiveanincometoelderlyandpeoplewithdisabilities are mostlysituatedon the samepolitical level • Lackof qualifiedpersonnel, undeclaredwork in informal care • Flanders: howtoachieve‘ageing in place’ ? • Overview care services forelderlyandpeoplewithdisabilities • Delphi-research feasibilityanddesirability policy options (N=170)

7. ("To support aging people with a disability, support within the regular residential elderly care is desirable / feasible " Desirable feasible Strongly disagree Disagree Neither agree/disagree Agree Strongly Agree No opinion No response

8. A matter of disability?

9. Joint opinion across groups

10. Some conclusions • Diversity on the basis of a double vulnerability to exclusion: handicap and age. Cf. Graz Declaration. Inclusion not only integration. Extra means are necessary. • ‘Target groups’ : not labels, but choice and functional criteria a demand-drivenperson centered approach( later life planning) • Residential care implies bridging of gaps between specialist and mainstream care, e.g. exchange of expertise, • ‘Ageing in place’ means activeand life spanning support of self and familycare by means of affordable mainstream home care

11. Workshop program

12. Best Practice Presentation:“Cohousing in diversity” Veerle Van Kets Maison BILOBA Huis (EVA vzw), Belgium

13. EU Network Ruth Owen FEANTSA, European Federation of National Organisationsworking with the Homeless

14. Possible questions for discussion • Do we provide generic care and/or/not specialized care for specific target groups? How? • ‘Social inclusion of minority groups’ does not stop when entering elderly care. How to promote ‘inclusive care’ ? ‘quality of life’ in later age for everybody ? etc… • Can we learn from the informal care that exists in some local areas with high concentration of ethnic groups?

15. Conclusions and ideas for further action • …