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Advocacy begins at home: establishing a support & advocacy group for parents of children with ADHD in Austria

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Advocacy begins at home: establishing a support & advocacy group for parents of children with ADHD in Austria

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  1. Bei dieser Präsentation wird sicher eine Diskussion mit dem Publikum entstehen, die zu Aktionsschritten führt. Verwenden Sie PowerPoint, um diese Aktionsschritte während Ihrer Präsentation festzuhalten. • Klicken Sie in der Bild-schirmpräsentation auf die rechte Maustaste. • Wählen Sie 'Besprechungs-notizen'. • Wählen Sie die Registerkarte 'Aufgaben'. • Geben Sie die zur Sprache kommenden Aktionsschritte ein. • Klicken Sie auf OK, um dieses Feld zu schließen. • Hierdurch wird automatisch eine Folie mit Aktionsschritten am Ende Ihrer Präsentation erstellt, auf der Ihre Notizen erscheinen. Advocacy begins at home: establishing a support & advocacy group for parents of children with ADHD in Austria Anne Tischlinger, B. Pharm.

  2. Verein ADAPT: a support & advocacy group for parents of children with ADHD in Austria • 1998: Awareness of ADHD in Austria virtually zero - Workshop in Vienna - Dr. Marina Peña (Costa Rica) • 1999: Interdisciplinary ADHD conference in Salzburg - Founding and presentation of ADAPT - First attempts at overcoming lack of knowledge Anne Tischlinger, B. Pharm.

  3. Aims of Verein ADAPT, according to its statutes • ADAPT - non-profit-making - founded to: • serve families, educators and therapists confronted with ADHD and SLD • hold meetings and lectures • compile and disseminate information and scientific material, also via Internet • provide support for ADHD & SLD problems in educational, social & health fields Anne Tischlinger, B. Pharm.

  4. ADAPT Members • Parents, foster parents, grandparents of children, adolescents, young adults with ADHD • Educators • Psychologists • Child psychiatrists, paediatricians • Therapists • Adults – with ADHD diagnosis or suspected ADHD Anne Tischlinger, B. Pharm.

  5. ADAPT Agenda (1) • ADAPT telephone • ADAPT website (www.adapt.at) • ADAPT newsletter • E-mail article service • ADAPT library - books - videos, DVDs & audiotapes Anne Tischlinger, B. Pharm.

  6. ADAPT Agenda (2) • Meetings: • Members (speaker/video/discussion + bookstall + library) • Parent/educator • Adults • Congresses, international gatherings Anne Tischlinger, B. Pharm.

  7. ADAPT Agenda (3) • Education – parents, educators • Speakers – from Austria, Germany • Seminars/lectures – ADAPT members – schools, educational authorities, specific groups of educators/MDs • Furthereducation – need to heighten awareness of mental health professionals • Parent training • Seminars, symposia, lectures – speakers from ADAPT, Austria, Germany, USA Anne Tischlinger, B. Pharm.

  8. ADAPT Agenda (4) • Lobbying - “Lobby4Kids” (www.lobby4kids.at) - Vienna health insurance fund – slow release medication for ADHD • International Research – ADHD Profile Study 2002 • Role-model to others – initiation of further education, setting-up of meetings Anne Tischlinger, B. Pharm.

  9. ADAPT Agenda (5) • Small-scale studies by ADAPT members - ADHD Parent Questionnaire – Pilot study (Erika Pöchhacker, 2001) - Alternative Therapies (Renate Grimmlinger, 2003) • Investigations: dubious therapies, spurious qualifications, hostile attitudes to ADHD “ADHD and blue and green algae” “Dipl. ADS-Trainer” awarded by private learning institute for “thesis” and expensive course “Indigo children” Austrian Hippocratic Society: “Real help instead of Ritalin” Anne Tischlinger, B. Pharm.

  10. ADAPT Agenda (6) • Education system - Contact – educational authorities, schools offering flexible curricula - Protest – cuts in numbers of educators • Media (radio and TV programmes, print media) - Need to put misperceptions right, portray disorder accurately, combat stigma of being labeled “ADHD” • Theses and extended essays - Resources for universities, vocational colleges and Austrian school leaving examination Anne Tischlinger, B. Pharm.

  11. ADAPT in the future Official umbrella organisation for ADHD in Austria Lobbying for changes in school laws – Austria has “Furtherance of Special Educational Needs” for behavioural problems, but nothing regarding how this integration is to be achieved in class. ADHD Day or Screening Day (as in Belgium or USA resp.) Outdoor gatherings for families with ADHD children An office and paid employees! Anne Tischlinger, B. Pharm.

  12. THE ART OF ADVOCACY “Being an effective advocate for your own child or for any children with specific learning difficulties requires knowledge, skill, contact with law-makers and lobbyists, and work with one’s child’s school to address the child’s specific needs and locate appropriate resources.” “By empowering your teenager to self-advocate, you’ll help him/her to develop the skills necessary for success in learning and life.” www.schwablearning.org Anne Tischlinger, B. Pharm.

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