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CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities

CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities.

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CDC’s N ational C enter on B irth D efects and D evelopmental D isabilities

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  1. CDC’s National Center onBirth Defects and Developmental Disabilities Birth Defects and Developmental DisabilitiesHereditary Blood DisordersHuman Development and Disability“Aligning our Future” by José F. Cordero, MD, MPH Assistant Surgeon General Director, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and PreventionCityMatch Conference, September 14, 2004, Portland Oregon Promoting the health of babies, children, and adults, and enhancingthe potential for full, productive living

  2. CDC’s Organization Prior to Future’s Initiative

  3. Operational Perspective of the New Customer Centric CDC Organizational Chart Office of the Director Coordinating Center for Environmental and Occupational Health and Injury Prevention Coordinating Center for Health Promotion Coordinating Center for Public Health Information and Services Channels People Living in All Communities Partners Alliances Stakeholders Office of Terrorism Preparedness and Response Coordinating Center for Infectious Diseases Office of Global Health

  4. CustomersSAFER  HEALTHIER  PEOPLE Alliances Channels Partners Stakeholders Public Health Systems Business Education Health Care Delivery Federal Agencies Coordinating Center for Health Information and Services National Center for Health Marketing National Center for Public Health Informatics National Center for Health Statistics Coordinating Center for Infectious Diseases NCID, NCHSTP, NIP Coordinating Center for Health Promotion NCCDPHP, NCBDDD, Genomics Coordinating Center for Environmental and Occupational Health and Injury Prevention NCEH/ATSDR NCIPC, NIOSH Office of Global Health Office for Terrorism Preparedness & Emergency Response Executive Leadership Team Management Council Executive Board Strategy and Innovation Chief of Science Chief of Public Health Improvement Workforce and Career Development Office of the Chief of Staff Director Office of the Chief Operating Officer CDC Washington

  5. Health Protection Goals • Preparedness • People in all communities will be protected from infectious, environmental, and terrorist threats. • Health Promotion & Prevention of Disease, Injury, and Disability • All people will achieve their optimal lifespan with the best possible quality of health in every stage of life

  6. The Role of Coordinating Center for Health Promotion • Minimize silos • Identify and capitalize on opportunities for coordination of research • Decrease duplication and redundant activities • Provide leadership, management, and accountability for cross-center goals

  7. Health impact CDC—a customer-centric organization Public health research Leadership for the nation’s health system Global health Effectiveness and accountability Why the Futures Initiative Matters

  8. Quote from CityLights “MCH specialists… look for a door at CDC marked ‘MCH’ as the point of entry to the wealth within. Finding none, they face the daunting prospect of navigating a maze of programs, people and projects to access and effectively use CDC’s many wonders - without a map.”

  9. What is not changing Commitment to scientific excellence Commitment to partners Integrity and stewardship of the public’s trust Roles of centers

  10. NCBDDD Strategic Planning

  11. NCBDDD Focus Areas For populations served by the center’s mission, we will: Promote healthy birth outcomes Ensure optimal child development and well-being through early early identification and intervention Prevent secondary conditions and promote health of adolescents and adults Address health disparities Ensure a healthy environment and appropriate emergency response

  12. Center Focus Area 1 Promote Healthy Birth Outcomes Primary prevention of adverse congenital and developmental outcomes with origins in the preconception, prenatal, and perinatal periods. Research and surveillance into the causes and risk factors associated with these outcomes.

  13. Healthy Birth Outcomes Fetal Alcohol Syndrome Prevention Program Kernicterus in Full-Term Infants Birth Defects State Programs Folic Acid:A Prevention Program

  14. Center Focus Area 2 Ensure Optimal Child Development and Well-Being Through Early Identification and Intervention Primary and secondary prevention of adverse physical, social, emotional, and developmental outcomes in children from birth through pre-adolescence.

  15. Developmental Milestones: Target Audiences • Primary Audiences: • Child health care providers, includingpediatricians, family physicians, PAs and NPs, nurses, parents of Children Ages 4 and Younger • Secondary Audience: • Childcare providers, includingday care workers, Head Start, and preschool teachers

  16. Center Focus Area 4 Address Health Disparities Research and intervention in promoting health equity across the lifespan, regardless of disability status, race, ethnicity, socio-economic status, or age. Study of differential incidence, treatment access, and survival rates among special populations, including infants with birth defects or genetic conditions, children with developmental disabilities, people with bleeding disorders, and people with physical and mental disabilities. Measurement and improvement of quality of life and participation in social and community activities.

  17. Impact of Fortification by Race/Ethnicity (Prevalence of Spina Bifida and Anencephaly) Hispanic 12.0 White Black 10.0 8.0 Prevalence (per 10,000) 6.0 4.0 2.0 Pre-fortification Optional fort. Mandatory fortification 0.0 1998 2001 1995 1996 1997 1999 2000 Year & quarter of birth

  18. Spanish-language Folic Acid CampaignIntervention Strategy Mass Media AND Interpersonal Communication A “surround sound” approach

  19. Intervention SFACES Communities Comparison Washington Maine Montana Vermont Minnesota North Dakota Michigan New Hampshire Oregon New York Wisconsin Massachusetts South Dakota Idaho New York Denver Sacramento Wyoming Michigan Rhode Island Connecticut Pennsylvania Iowa Nebraska New Jersey Nevada Ohio DC Indiana Las Vegas Delaware Illinois Utah Maryland Bakersfield West Virginia Colorado California Virginia Kansas Missouri Kentucky North Carolina Tennessee Arizona Oklahoma Arkansas South Carolina New Mexico Los Angeles San Antonio Mississippi Georgia Alabama Miami Texas Florida Louisiana Alaska U.S. Virgin Islands Hawaii Puerto Rico Guam

  20. SFACES: Consumption from multivitamin or folic acid alone 50 42.2 44.0 45 37.5 40 35 36.8 35.0 30 30.4 Percentage of respondents 25 20 15 7.4 10 5.6 5 3.4 0 0 1.6 2000 2002 2003 Survey year Intervention Multivitamin Intervention Folic acid Comparison Folic acid Comparison Multivitamin

  21. CDC’s National Center onBirth Defects and Developmental Disabilities Birth Defects and Developmental DisabilitiesDisability and HealthHereditary Blood DisordersTHANK YOU ! Promoting the health of babies, children, and adults, and enhancingthe potential for full, productive living

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