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Service Impact on Quality of Life (SIQOL) group meeting European Platform for Rehabilitation

Building capacity for excellence in service provision for people with disabilities. Service Impact on Quality of Life (SIQOL) group meeting European Platform for Rehabilitation. 14:00 – 17:15 Domstad Centre, Utrecht. Thursday 19th September. Donal McAnaney. Agenda - Open Meeting.

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Service Impact on Quality of Life (SIQOL) group meeting European Platform for Rehabilitation

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  1. Building capacity for excellence in service provision for people with disabilities Service Impact on Quality of Life (SIQOL) group meetingEuropean Platform for Rehabilitation 14:00 – 17:15 Domstad Centre, Utrecht Thursday 19th September Donal McAnaney

  2. Agenda - Open Meeting 14:00 Welcome and Introduction. 14:10 The Context for Measuring Quality of Life Social Services. Donal McAnaney 14:30 Review of the 2017 Benchmarking process. Donal McAnaney 15:00 URI to report on the use at the national level. Valentina Brecelj, URI 15:20 Coffee break 15:40 Extending the QOLIS to Social Care and Independent Living services. Piloting of the Easy-Read & Simplified versions. Linda Coone, NLN 16:00 Closing Remarks

  3. Agenda - Members Meeting 16:00 Issues for Discussion and Decision • Use of larger samples • Cut off points for items analysis coding • Format of the QOLIS Questionnaire – Location of Personal Details • Moving example to the front of the Simplified and Easy Questionnaires • Replacing DK with Don’t Know in the Simplified Questionnaire • Approval of the Terms and Conditions 16:30 Planning the 2018-2019 Benchmarking Schedule - New reporting arrangements 17:00 Varia and Closing

  4. Measuring Quality of Life in Social ServicesThe Quality of Life Impact of Services

  5. Challenges in Defining QOL • Lacks uniform or consistent definition. • The subjective and personally derived sense of overall well-being that results from an evaluation of happiness or satisfaction across an aggregate of personally or clinically important domains. • Multidimensional in nature. • Physical health • Psychological or emotional health • Social support • Employment • Economic or material well-being

  6. Subjective and Objective Indicators of QOL Subjective Objective Norm referenced measures of function/well-being Social indicators or outward material circumstances - employment or marital status, salary or physical function or symptoms assessed by an external observer • Phenomenological feelings about well-being. • Estimates of satisfaction with life in general or with specific life dimensions

  7. Distinguishing Quality of Life from Related Constructs • Interchangeable word usage: • Quality of life • Subjective well-being • Life satisfaction • Subtle distinctions and unique theoretical nuances. • Differences in subjective and objective perspective. • Affects outcome measures.

  8. Terms equated with Quality of Life • Life satisfaction • Self-esteem • Well-being • Health • Happiness • Adjustment • Functional status • Value of life

  9. Other QOL Measurement Tools • The Craig Handicap Assessment and Reporting Technique (CHART) • The Craig Hospital Inventory of Environmental Factors (CHIEF) • WHO Disability Assessment Schedule Version II (WHODAS II) • WHO Quality of Life Scale (WHOQOL) • SF 36 Health Outcomes Survey • The Functional Assessment Measure (FAM) and the Functional Independence Measure (FIM) • Impact on Participation and Autonomy Questionnaire (IPA) , • Community Integration Measure (CIM) , • Reintegration to Normal Living Index (RNL) , • The Sense of Well-Being Scale (SWBI) • The Canadian Occupational Performance Measures (COPM)

  10. Issues with QOL Survey Tools • A requirement to carry out a pre-post administration; • A lack of specificity to service delivery; • A focus on specific types of disabilities; • A medical rather than a biopsychosocial approach; • The scope of items and content; • Relevance to intended service and programme outcomes.

  11. EQUAL Model • The EQUAL model presents a systematic approach focusing at on including the perspective of Quality of Life of service users, developing and following up individual person-centred plans when welfare- or social services are provided.

  12. EQUAL Tools • Based on individual indicators defined by the service user. • Two instruments/tool for scoring the perception of Quality of Life of the service user. • A profile based on the different domains • An overall score based on the identified QoL indicators in the individual plans for the clients. • Provides the service user and the professional a picture of the overall Quality of Life improvement during the service delivery, • A measure of the extent the service has had a positive impact of Quality of Life for the individual service user.

  13. EQUAL Model • No fixed indicators. • The service user individually identifies the indicators. • This takes into consideration what is important to the person • Creates greater involvement and commitment from the service users. • Enhances awareness for the service user and the professional why the service or activities are important. • The purpose of the service is safeguarded. • A bridge between the intention of the service and what is important to the service users in terms of Quality of Life. • Identify at an early stage a lack of balance between the content of the service and the needs of the service user

  14. GENCAT Scale • GENCAT Scale is based of the eight-domain model proposed by Schalock and Verdugo (2002) • Assessment of quality of life-related personal outcomes. • Third-party respondent rates a service users QOL based a systematic observation and a deep knowledge of the person. • The instrument contains 69 items. • The items are formulated as third-person statements with an answer format of four frequency options • Never or hardly ever • Sometimes • Often • Always and almost always • Completing the scale takes around 15 min, after respondents are sensitized to its contents, format, and conceptual and measurement framework (Gómez, Verdugo, et al, 2013 p.20).

  15. Uses of the GENCAT • Organisational and system level analysis to produce Provider Profiles • Comparison of individuals in different diagnostic groups • Province level performance standards • Continuous improvement plans • Evidence based policy making

  16. GENCAT and QOLIS Dimensions GENCAT QOLIS Personal development: Interpersonal Relations Self-determination Social inclusion: Employability, Citizenship Rights Wellbeing: Emotional Wellbeing, Physical Wellbeing, Material Wellbeing. • Emotional wellbeing • Interpersonal relationships • Material wellbeing • Personal development • Physical wellbeing • Self-determination • Social inclusion • Rights

  17. Schalock & VerDugo (2002)

  18. Development of QOLIS

  19. Development of QOLIS

  20. Impact of QOLIS Benchmarking on Service User Perceptions - France

  21. EPR OMVR Benchmarking All Centres

  22. The Quality of Life Impact of Services Questionnaire (QOLIS)

  23. Features of the QOLIS • The QOLIS allows respondents to link their ratings of QOL directly to the service in which they participated • It can be used to gather ratings from respondents who are still actively participating in a service. • QOLIS has been evaluated for reliability and found to be stable over time

  24. Features of the QOLIS • The QOLIS has measures to ensure consistency in the proportion of respondents who can answer an item regardless of their capacity • The format has been adjusted to control for sensitivity of items to response bias or acquiescence

  25. Full Text QOLIS Sample Items My participation in the activities performed in ---------enabled me increase the number of people with whom I have regular contact. My participation in the activities performed in ---------contributed to me feeling more capable in taking decisions.

  26. Easy-Read QOLIS Sample Items My service helps me to make more friends My service helps me decide things for myself

  27. Simplified Rating Scale QOLIS Sample Items My service helps me to make more friends My service helps me decide things for myself

  28. QOLIS Examples

  29. QOLIS Training Items Full Edition Training Items • My participation in the activities performed in the centre: • Ex1 Always took place from 12 midnight to 6am • Ex2 Enabled me to learn • Ex3 Enabled me meet other people • Ex4 Enabled me to grow taller • Easy-Read and Simplified Rating Training Items • Ex 1 My service helps me to fly in the sky • Ex 2 My service helps me to learn • Ex 3 My service helps me meet other people • Ex 4 My service helps me to become taller

  30. Demographic Data

  31. Demographic Data

  32. Disability Item

  33. The QOLIS Scorebook

  34. QOLIS Input Sheet

  35. QOLIS Summary – Vocational Services

  36. QOLIS Summary – Independent Living Services

  37. Response Rates for Each Interpersonal Skill Item

  38. Outputs of the Process

  39. QOLIS Benchmarking Table

  40. QOLIS Benchmark Graph

  41. QOLIS Item Analysis • • 0%-30% Significant Area for Improvement (SAFI) • • 31%-40% Moderate Area for Improvement (MAFI) • • 41%-75% Relative Strength (RS) • • 76%-100% Significant Strengths (SS)

  42. QOLIS Item Analysis

  43. Review of the 2017 Benchmarking process

  44. SIQOL Benchmark 2017

  45. QOLIS Trends Domains 2010-2017

  46. QOLIS Trends Domains 2010-2017

  47. Significant Strengths • 13. Opened doors for new opportunities in my life. • 14. Enabled me to actively engage in my education and learn new things. • 16. Enabled me to feel more capable of solving problems. • 22. Enabled me to know better my capacities. • 34. Enabled me to identify the support and services I need to achieve my life goals. • 1. Improved my chances of getting a job. • 6. Will help me to keep a job when I get one. • 13. Have increased my sense of responsibility. • 14. Have made me better in coping with changes.

  48. Areas for Improvement • 4. Enabled me to feel more satisfied with my family relationships. • 18. Enabled me to feel more stable emotionally. • 23. Enabled me to feel less alone now. • 24. Contributed to the improvement of my health. • 25. Enabled me to have more healthy eating habits. • 26. Enabled me to use my leisure time better.

  49. Areas for Improvement • 27. Enabled me to become more mobile within my environment. • 30. Enabled me to feel more able to do physical activities. • 31. Enabled me to better manage my financial situation. • 33. Enabled me to be more involved in community and voluntary activities. • 35. Enabled me to be informed on current matters. • 36. Enabled me to take part in cultural and leisure activities.

  50. Follow us: @EPR_Network EPR.Brussels Enjoy 2018 Annual Conference Utrecht 20/21 Sept 2018

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