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School of Healthcare FACULTY OF MEDICINE & HEALTH. The Role of Digital Pathology in Talking to Patients about Cancer. Rebecca Randell r.randell@leeds.ac.uk. Introduction. Background Histopathology/surgical pathology D igital pathology Digital microscope project
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School of Healthcare FACULTY OF MEDICINE & HEALTH The Role of Digital Pathology in Talking to Patients about Cancer Rebecca Randell r.randell@leeds.ac.uk
Introduction • Background • Histopathology/surgical pathology • Digital pathology • Digital microscope project • Sharing this technology with patients • Our experiences • Communication goals • Relationship of technology to those goals • Questions to explore • Questions
But where’s the patient? • Demonstrations to members of the public (1000+) • Digital Pathology Patient Panel • Interest and enthusiasm • Cancer no longer ‘invisible’ • ‘Knowledge is power’ – helping them to come to terms with diagnosis • Potential to help understand decisions made in care
What’s the communication goal? • Improved perception of disease • Increased sense of control • Increased knowledge • Better able to contribute to decisions about their care • Requires research with patients to understand their expectations and experiences of receiving information about their diagnosis
How does technology address those goals? • Leeds Virtual Microscope: walk up and use • Digital pathology: accessibility of images • Doesn’t require diagnostic quality resolution
Questions to explore • What is the communication goal? (qualitative) • Does it achieve it? (experimental) • Who should discuss these images with the patient? • At what point in the patient pathway?