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OPADD – Ontario Partnership on Aging and Developmental Disabilities

OPADD – Ontario Partnership on Aging and Developmental Disabilities. Reena. Social Service agency in North Toronto and York region Funded – Ministry of Community and Social Services Supporting Individuals with Developmental Disabilities by providing: Day Supports (over 100 individuals)

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OPADD – Ontario Partnership on Aging and Developmental Disabilities

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  1. OPADD – Ontario Partnership on Aging and Developmental Disabilities

  2. Reena • Social Service agency in North Toronto and York region • Funded – Ministry of Community and Social Services • Supporting Individuals with Developmental Disabilities by providing: • Day Supports (over 100 individuals) • Residential Supports (308) • From SIL to Elderhomes • Outreach and Respite Options (at least 300 at any one time)

  3. ReenaDemographics 2012 and 2022

  4. Reena and Aging • Oldest individual at Reena was 89 years old • Oldest individual currently is 85 years old • Oldest individual with Down Syndrome is 67 yrs • More than 50% of our residential clients are over the age of 50 years • Currently supporting 11 individuals living in Long Term Care homes

  5. Overview of Aging

  6. Historical Context • Most individuals with any level of developmental disability lived in Provincial Institutions prior to the 1970s • Deinstitutionalization into the community • Aging in institutions was dramatically different that what is occurring in the community today

  7. Historical Context • Average age at death of persons in Canadian institutions in 1976 - 1978: • Males = 36.6 years • Females = 37.9 years

  8. Current Trends • This population is aging for the first time • The increases in life span is most dramatic in the last 35 years since deinstitutionalization • Most likely due to improvements in living conditions and advances in health care

  9. Current Trends • Prevalence is difficult for this population many studies have flaws • Generally accepted between 1 – 3% of the population • Significant decrease in older years – but this is probably changing as lifespan is increasing • Estimated in Ontario there are 12,000 individuals with developmental disabilities over the age of 50 years

  10. Carter & Jancar, 1983 Janicki, Dalton, Henderson, & Davidson, 1999

  11. Definition of Elderly • Debate - literature varies on the age • Many state between 45 - 50 years (depending on type of disability) • related to a decline in functional living skills • Individuals with Down’s syndrome – longevity is 10 – 20 years less than other individuals with developmental disabilities • Early aging is also seen with individuals with other syndromes and neurological conditions

  12. Aging Differences • Individuals with greater levels of disability (developmental and physical) are more likely to have higher mortality rates • usually associated with respiratory diseases and conditions caused from the congenital condition of their central nervous system

  13. Health Care and Aging • The Health Care needs are often complex becomes more challenging as individuals age. • The Health assessment of an older person with DD can be multi-faceted • potential for a number of underlying conditions or diseases causing health concerns. • To add to the complexity, • many individuals with DD cannot verbally communicate about their symptoms. • Some symptoms may present as behavioural problems rather than as health problems

  14. OPADD • The purpose of OPADD is to bring together two sectors (Developmental Disability and LTC/Seniors) in a collaborative partnership to provide seniors with a developmental disability with the same access to services as all Ontarians. This involves good planning, transition, and appropriate support for the needs of individuals.

  15. Ontario Partnership on Aging and Developmental Disabilities • Need to develop relationships with Senior Services and Long-Term Care • Health Canada funds - 1999 • Trillium funding - 2004 • 5 year project managed by a collaborative • Project Manager with 8 regional committees • SHRTN – Aging and Developmental Disabilities CoP - 2009

  16. OPADD – Purpose and Goals • Developmental Services and Seniors/Long-Term Care working together • Encourage and connect with regional committees • Support cross sector projects • Collaborative meets with MCSS, MOH-LTC and the Seniors Secretariat – systemic issues • Web-site –www.opadd.on.ca

  17. Potential Networking Benefits • Between health/seniors services and the developmental disability sector: • Health Care and Aging expertise • Programming ideas • Communication strategies • Behavioural assistance • Cross sector training

  18. Building Relationships • Important to recognize differences and challenges • Recognize we speak different languages • Need to define our terms and be nonjudgmental with how we describe people and support • Openness and willingness to work together • Try to look beyond barriers

  19. Palliative Care • Important for Developmental Services to access supports the same as anyone else • Palliative care is an important support - this may be a new experience as life spans increase – those aging may experience palliative conditions • This may not have been the case in the past with early mortality • Or Palliative care took place in large DS institutions

  20. Palliative Care • This may take place in a hospice setting, acute or long-term care, a group home, family home or apartment • An individualized plan would need to be developed based on the person’s needs, wishes and the support team

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