Self-care & Retention

1. Self-care & Retention June, 2012

2. Self-care and Retention Pop-up Question What do we mean by Self Care? Visit www.incarecampaign.org

3. Potent ARTs have transformed HIV into a chronic manageable disease Many similarities to other chronic diseases but also important differences (stigma, drug resistance) HIV therapy is life long Treatment strategies must be sustainable HIV patients have day-to day responsibilities for their care Providers must support motivation, tools, and skills Aberg J. The Changing Face of HIV Care: Common Things Really Are Common. Ann Intern Med. 2006;145(6):463-65 Self-care and Retention HIV as a Chronic Condition

4. YOU

5. “The ability of patients with chronic illnesses, in a complementary partnership with their health care providers, to manage the symptoms, treatment, lifestyle behavior changes, and the many physical and psycho-social challenges that they face each day.” A composite of definitions in the literature Self-care and Retention What is self-care?

6. Learn about their HIV disease Develop effective communication skills Actively partner with providers in decision-making Practice action-planning and problem solving Self-monitor symptoms and follow treatment directions Seek expert medical care and advice Use family, peer, and community support resources Maintain emotional and psychological balance Practice health-enhancing behaviors Self-care and Retention What is self-care for people with HIV/AIDS?

7. Self-care and Retention Pop-up Question Do you practice self care? How? Visit www.incarecampaign.org

8. Self-care and Retention Self-care and Retention in HIV Care • Personal. [e.g. disease knowledge, perceived illness, acceptance] • Structural [help remembering appointments, transportation] • Financial [insurance, public support – housing, food, etc.] For more information about self-care, visit the NQC web site: http://nationalqualitycenter.org/index.cfm/5943

9. Self-care and Retention Things You Can Do to Improve Self-Care – Personal Changes • Improve knowledge about HIV; dispel negative beliefs • Improve your health literacy – your understanding of HIV care • Connect with others who can share information, answer questions and provide support Visit www.incarecampaign.org – “Resources Tab” to learn about effective retention initiatives.

10. Self-care and Retention Things Others Can Do to Support Your Self-care • Reminder calls or texts • Transportation or other supports • Insurance that enables routine access to health care; know how to use care Visit www.incarecampaign.org – “Resources Tab” to learn about effective retention initiatives.

11. Self-care and Retention Pop-up Question What do you do to improve your ability to take care of yourself? How do you engage others to support your self-care efforts? Visit www.incarecampaign.org

12. Self-care and Retention Check Out the “Making Sure” Curriculum • It’s free • Avilable through the National Quality Center • Use if for your group of HIV+ peers Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886 Order Copies: info@incarecampaign.org

13. Self-care and Retention A Tool to Help Improve Self-Care • Learn how to define “quality.” • Learn about “clinical indicators” to measure quality care. • Learn problem-solving and communication skills. • Learn to be your own self-care advocate. Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886 Order Copies: info@incarecampaign.org

14. Self-care and Retention Connect with Partners in+care • Learn about retention in HIV care • Learn about self-care • Link to and learn from others living with HIV/AIDS Click the Partner Tab www.incarecampaign.org

15. Self-care and Retention Join the Partners in+care Network • Email notices and updates about Pi+c and in+care Campaign • Provide advice [Pi+c surveys] +Sign up to Be a Partner in Care Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit

16. Self-care and Retention Directly Connect through Partners in+care on Facebook • Share tips, stories, experiences & resources • Community of people living with HIV/AIDS and allies • Secure and confidential • Join. Send email to incare@NationalQualityCenter.org – Facebook in subject line

17. Visit Web www.incarecampaign.org - “Partners” tab Sign up for Pi+c Networkwww.incarecampaign.org – “Partners” tab Join Facebook Send email to incare@NationalQualityCenter.org – “Facebook” in subject line Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floor New York, NY 10007Phone 212-417-4730