The Importance of STEVE

1. LIKE NAPHSIS, IT’LL GET YOU… The Importance of STEVE COMING… AND GOING

2. The Importance of STEVE • NAPHSIS Past President • State and Territorial Exchange of Vital Events • A secure electronic messaging system (but NOT like EVVE) • Intelligence Reform • Good Business Practices

3. Intelligence Reform Regs • Very rapidly report fact of death to state of birth • Flag birth records “deceased” to protect them from fraudulent use • For completeness we need inter-jurisdictional exchange (“IJE”) and STEVE

4. STEVE Will Speed Things Up • Electronic exchange through STEVE can be as often as sending partners want • STEVE will send batches of any size, even one record at a time • Once a file is in place, STEVE will parse and send it automatically

5. IJE Methods Now - CA • California sends notification of about 120,000 deaths/year to birth jurisdictions • Each is a plain paper copy of the death certificate • 300+ REAMS of paper + postage • Secure??? Hardly!

6. STEVE is Better • Paperless • Secure • No more batch printing, packaging, postage • Huge savings in staff time

7. Other Notification Methods • Line listings • Abstracts • Each jurisdiction’s format is different • NCHS SDN/VRX – used by too few

8. STEVE: One Exchange Method • STEVE builds on knowledge gained from NCHS’ SDN/VRX system • All events will be sent and received in same format • Standard “roster” record layout is posted on NAPHSIS website

9. STEVE for Complete Data Files • Send data to place of residence • Deaths • Births • Fetal deaths • ITOPs • Receive data for your jurisdiction’s residents

10. STEVE Will Send It All • File layouts for exchanging births, deaths, fetal deaths, and ITOPs have been developed and posted • Out-of-jurisdiction resident events can also be exchanged in batches of any size or timing • Updated/edited replacement records can be sent

11. Honor Sending State’s Limitations • Each jurisdiction has its own laws and regulations that differ widely • By signing IJE Agreement you’re agreeing to use others’ events appropriately • Violations may occur, or data completeness may be unnecessarily compromised

12. STEVE Manages “Permissions” • Sending partners specify their jurisdictions’ limitations on data use when “setting up” STEVE • Sending partners may specify data elements to be given to each program • STEVE is more detailed and flexible than IJE Agreement “Matrix” of permissions

13. STEVE for Receiving Partners • STEVE makes it easy to honor others’ data restrictions • Receiving partners will only receive data elements they can use • STEVE allows different programs to obtain different data elements in their own “mailboxes”

14. IJE’s Major Challenges • Getting information from jurisdictions can be slow, unpredictable, or impossible – STEVE is faster • Sending information can be expensive and time consuming – STEVE is cheaper • Knowing and honoring others’ data use restrictions can be unbearably complex – STEVE is simpler

15. STEVE is a Web-Based Messaging System Internet Sending Jurisdiction Receiving Jurisdiction S

16. A Controller Module Will House Master Files and Collect Transaction Meta-data TM of Jurisdiction A TM of Jurisdiction B Internet Controller Module

17. Jurisdictions Will Configure Filters to Designate Content and Recipients of their Exchange Messages IJE File

18. Configuring a TM Filter for Exchange with Other Vital Records Jurisdictions 3. FILE LAYOUT RECIPIENT Element Element Element Element Element Element. . . . . . . . . . . . 1. Vital Records NCHS Programs Requester Internal 5. FILE TYPE 2. Natality (2003) Natality (pre-2003) Mortality Roster Fetal Death ITOP Marriage (future) Divorce (future) Civil Union (future) 4. Check all Check none

19. PROGRAM TYPE Birth Defects Newborn Hearing Child Support Enforcement Health Start Program Immunization Infant Death Review PRAMS AIDS Registry Medicaid Enrollment IRB--Approved Research Check all Check none Configuring a TM Filter for Exchange with Programs/ Agencies 1. RECIPIENT FILE LAYOUT Vital Records NCHS Programs Requester Internal Element Element Element Element Element Element. . . . . . . . . . . . 4. FILE TYPE 5. 2. Natality (2003) Natality (pre-2003) Mortality Fetal Death ITOP Marriage (future) Divorce (future) Civil Union (future) 3. Check all Check none . 6.

20. PROGRAM TYPE Birth Defects Newborn Hearing Child Support Enforcement Health Start Program Immunization Infant Death Reviews PRAMS AIDS Registry Medicaid Enrollment IRB--Approved Research Check all Check none 4. Configuring a TM Filter for Exchange with Internal Programs and Agencies RECIPIENT FILE LAYOUT 1. Vital Records NCHS Programs Requester Internal Element Element Element Element Element Element. . . . . . . . . . . . FILE TYPE 5. 2. Natality (2003) Natality (pre-2003) Mortality Fetal Death ITOP Marriage (future) Divorce (future) Civil Union (future) 3. Check all Check none . 6.

21. Configuring a TM Filter for Exchange with NCHS 3. FILE LAYOUT Element Element Element Element Element Element. . . . . . . . . . . . 1. RECIPIENT Vital Records NCHS Programs Requester Internal FILE TYPE 2. 5. Natality (2003) Natality (pre-2003) Mortality Fetal Death (future formats) 4. Check all Check none

22. Configuring a TM Filter for a Record or Data Request 3. FILE LAYOUT 5. SOURCE RECIPIENT Element Element Element Element Element Element. . . . . . . . . . . . F:/birth082008.dbf 1. Vital Records NCHS Programs Requester Internal 6. DESTINATION Alabama Alaska American Samoa Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Hawaii FILE TYPE 2. Natality (2003) Natality (pre-2003) Mortality Roster Fetal Death ITOP Marriage (future) Divorce (future) Civil Union (future) 4. Check all Check none 7.

23. Exchange Files are Automatically Delivered to Recipient Mailboxes Vital Records Immunization Child Support Enforcement Receiving TM EHDI Research

24. Configuration of Program Mailboxes RECIPIENT PROGRAM TYPE ACCESS CONTROL Vital Records Programs Birth Defects Newborn Hearing Child Support Enforcement Health Start Program Immunization Infant Death Reviews PRAMS AIDS Registry Medicaid Enrollment IRB--Approved Research Operator User 1. 3. 2. USERS Jane Doe John Q. Public Paris Hilton Dr. McDreamy 4. 6. MAILBOX SETUP Birth Defects Mailbox Authorized access: P.Hilton Email: philton@ca.gov Destination ID xxcythol 5.

25. Outgoing Messages from Sender NCHS TM Main VR Data Repository Of Sending Jurisdiction NCHS-reportable vital events Medical coding, other data STEVE Source files STEVE Sending Jurisdiction’s TM Out-of-jurisdiction records STEVE Metadata and Updates to profiles and settings Receiving Jurisdiction’s TM Controller Module STEVE

26. Incoming Messages to Sender NCHS TM Main VR Data Repository Of Sending Jurisdiction MDNs, corrections, Medical coding, other data STEVE Received files STEVE Sending Jurisdiction’s TM MDNs Out-of-jurisdiction records STEVE Receiving Jurisdiction’s TM Master file profiles and settings Controller Module STEVE

27. Current Status of STEVE • SMS Awarded Contract • Development Q1-Q3 of 2008 • Deployment beginning Q4 of 2008 and continuing through 2010 • Seeking additional funds to complete development and deployment

28. Preparation – START NOW! • Prepare to convert your files into standard IJE format • Prepare to convert received records into your own format • Consider hardware and software • Attend the upcoming STEVE technical break-out session • When you’re ready, volunteer your state for roll-out

29. IT’LL GET YOU (or at least your data)… The Importance of STEVE FROM BIRTH… TO DEATH AND BACK AGAIN!

30. For More Information • Check the NAPHSIS website at www.naphsis.org for updates • The NAPHSIS website has standard record layouts in the IJE project area http://www.naphsis.org/index.asp?bid=987 • Contact Leesa Shem-Tov at lshemtov@naphsis.org or Jane McKendry at jane.mckendry@cdph.ca.gov