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ASD Advisors Forum

This forum will explore the key issues and concerns faced by siblings of individuals with ASD and provide strategies for supporting them. Topics include sibling relationships, increased vulnerability, social isolation, and practical skills development. Additionally, the programme will cover ASD school training, autism-friendly schools, and primary 7 transition programmes. Resources such as ICT support and Kidspiration will also be discussed.

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ASD Advisors Forum

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  1. ASD Advisors Forum 18th February 2013

  2. Programme Overview • Authority wide CPD • ICT additional support resources & Kidspiration • Siblings • ASD School Training • Autism Friendly School/Class • Primary 7 transition Programme

  3. Authority wide CPD • NQT training • 1 day training course foe schools staff (pre 5 – primary/secondary) • Twilights for wider education staff

  4. ICT additional support resources Resources audit Kidspiration – in schools? - Used for ASD pupils?

  5. Siblings • Background • Cluster programme • Resources

  6. Sibling issues • Small group activity • Discuss what you believe are the key issues/concerns for siblings of individuals with ASD.

  7. A sibling’s story • I wish I could accept his autism • A bond that nobody can break

  8. Issues for siblings • Increased vulnerability of whole family • Risk of social isolation • Risk of increased stress levels • Individual need – resilient to high level of need • Quality of sibling relationships

  9. Key components in keeping families strong • Open, supportive communication between core family members • Supportive social networks • Development of practical skills and a positive outlook • Positive relationships with professionals • Needs for help being met appropriately by services

  10. Possible thoughts/feelings of a sibling • Conflicting emotions –intensely protective vs Angry/Embarrassment • Am I responsible for my brother/sister in school? • Overshadowed by sibling • Frustration, sadness and resentment at the impact ASD has on the relationship with their sibling. • Don’t want to talk to parents in case they upset them further • Parental expectations might be overwhelming • Home life may be tense and exhausting

  11. What can school do to help? • Positive home/school relationships – understanding of their individual situation • Provision of age appropriate information about ASD • Teaching siblings some simple skills in play • Being interested in them as individuals in their own right • Encourage them to talk about their feelings - mentor • Acknowledge their caring role • Develop their coping skills • Sibling workshops

  12. Useful reading for brothers and sisters • Mr brother or sister is different - NAS information sheet - HANDOUT

  13. For younger brothers and sisters • Bleach, F. (2001). Everybody is different: a book for young people who have brothers or sisters with autism. • Davis, J. (1994). Able autistic children children with Asperger syndrome: a booklet for brothers and sisters. • Fairfoot, E. and Mayne, J. (2004). My special brother Rory. • Gorrod, L. (1997). My brother is different. • Hunter T. H. (2006). My sister is different • Koutsis, A., De Clercq, G., and Galbraith, R. (2006). What about me? The autism survival guide for kids. • Welton, J. (2003). Can I tell you about Asperger syndrome? A guide for family and friends.

  14. For adolescent brothers and sisters • Hoopman, K. (2000). Blue bottle mystery. • Haddon, M. (2003). The curious incident of the dog in the night-time. • Jackson, L. (2002). Freaks, geeks and Asperger syndrome.

  15. Support for siblings of people with autism • Autism Helpline – NAS • NAS Website – section for siblings • Barnardo’s Scotland – small groups • The Den – Interactive site fromt eh Autism Education Trust • SibsKids – for younger brothers and sisters

  16. ASD School Training • Current arrangements? • Consider the existing programme • What would you include? • Show it be a cycle of training?

  17. Autism Friendly School/Class • Creating standards • Would this be useful • What would the impact be • What would you include

  18. Primary 7 transition Programme

  19. National needs analysis www.autismtoolbox.org.uk/questionnaire

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