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NDRI Mission Since 1980

NDRI Mission Since 1980. NDRI Rare Disease Human Tissue Resource. Adenoid Cystic Carcinoma Research Foundation Alpha-1 Foundation CF Foundation CFC International Ehlers-Danlos National Foundation Fanconi Anemia Research Fund Foundation for Sarcoidosis Research

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NDRI Mission Since 1980

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  1. NDRI Mission Since 1980

  2. NDRI Rare Disease Human Tissue Resource

  3. Adenoid Cystic Carcinoma Research Foundation Alpha-1 Foundation CF Foundation CFC International Ehlers-Danlos National Foundation Fanconi Anemia Research Fund Foundation for Sarcoidosis Research Foundation for Thymic Cancer Research GBS/CIDP Foundation International HHT Foundation International Histiocytosis Association of America Intracranial Hypertension Research Foundation LAM Foundation LAM Treatment Alliance NTSAD OM Support Network PMD Foundation SLO/RSH Foundation Spina Bifida Association VHL Family Alliance Wilson’s Disease Association International NDRI Rare DiseaseVHO Partnership

  4. NDRI Rare Disease Donor Registry 7 • 411 Registered Donors with 46 Diseases in 45 States • 2,925 Tissues Recovered from 174 Donors with 33 Diseases

  5. 58 Organ Procurement Organizations 35 Eye Banks 25 Tissue Banks 12 Hospital Centers 14 Remote Sites 41 Recovery Personnel NDRI National Procurement Network

  6. Options to Aid Research through Tissue Donation

  7. NDRI’s Wilson’s Disease Donor Registry

  8. NDRI’s Wilson’s Disease Donor Registry 2.Inform your family members and medical team / physician that you have registered as a tissue donor with NDRI

  9. NDRI’s Fanconi Anemia Donor Registry

  10. Thank You !

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