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Study Aim

Measurement of social participation outcomes in rehabilitation of veterans with traumatic brain injury .

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Study Aim

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  1. Measurement of social participation outcomes in rehabilitation of veterans with traumatic brain injury William Stiers, PhD; Noelle Carlozzi, PhD; Alison Cernich, PhD; Craig Velozo, PhD; Theresa Pape, PhD; Tessa Hart, PhD; Suzy Gulliver, PhD; Margaret Rogers, PhD; Edgar Villarreal, MS; Shalanda Gordon, PhD; Wayne Gordon, PhD; Gale Whiteneck, PhD

  2. Study Aim • Consider issues in improving measurement of social participation in veterans with traumatic brain injury (TBI) to increase meaningful evaluation of rehabilitation treatments. • Relevance • An estimated 4%–20% of veterans have TBI. • Must evaluate whether rehabilitation activities meaningfully improve the lives of veterans with TBI, especially their community and vocational participation.

  3. Methods • Discuss conceptual models of participation. • Review participation subdomains and their measurement instruments. • Identify current research issues and needs related to participation measurement. • Make suggestions for future development of participation measures.

  4. Results • Established and emerging assessment tools: • Community Integration Questionnaire. • Participation Objective–Participation Subjective Scale. • Participation Assessed with Recombined Tools. • Mayo-Portland Adaptability Inventory 8-Item Participation Index. • Traumatic Brain Injury-Quality of Life. • Deployment-Related Traumatic Brain Injury/Polytrauma-Quality of Life. • Research gaps: • It is important to combine classic test theory with item response theory in measuring participation. • Limitations in reading unidimensional structure and inconsistencies in item-difficulty ordering suggest that a unidimensional model may not apply to participation. • Self-report reliability may be affected by TBI-specific cognitive impairments.

  5. Conclusions • Recommendation for moving field forward: • Develop an evidence-based synthesis program priority. • Develop a “Rehabilitation Medicine Assistant” program for electronic medical records. • Ensure that measurement of participation enhances rehabilitation quality.

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