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Kidney Patient Job Retention:

Learn about the impact of job loss on ESRD patients and the benefits of work, such as income, self-esteem, and social connections. Discover strategies to keep kidney patients working and thriving.

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Kidney Patient Job Retention:

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  1. Kidney Patient Job Retention: The Next Rehab Frontier Dori Schatell, MS Medical Education Institute, Inc

  2. Medical Education Institute • MEI Mission: Help people with chronic disease learn to manage and improve their health • MEI has worked on or developed: • Original DOQI guidelines • Life Options™ • Kidney School™ • Core Curriculum for the Dialysis Technician • Fistula First • Medicare Dialysis Facility Compare website • Home Dialysis Central

  3. Sen. Hartke Testimony: 1972 “60% of those on dialysis can return to work but require retraining, and most of the remaining 40% require no retraining whatsoever. These are people who can be active and productive, but only if they have the life-saving treatment they need so badly.”

  4. Life Options Rehabilitation Program Dedicated to helping people live long and live well with kidney disease

  5. Age of ESRD Patients 52% of incident ESRD patients are <65 N= 607,329 Data Source: USRDS 2003 ADR, Table C4, Incident ESRD Patients 1995-2002

  6. N = 1599 39.4% 20.5% 11% 9.8% 14.9% 3.8% Education of ESRD Patients Schatell D, Klicko K, Becker BN. Am J Kidney Dis. 48(2):285-91, 2006.

  7. Job Loss is the RulePatients Age 18-55 at 90 Days Post Initiation, May 1995-June 2001 Data Source: USRDS Special Data Request 2003

  8. Job Loss/Disability Can Impoverish ESRD Families

  9. Effect of Job Loss on Patients “Hi my name is X, i’ve been on dialysis for 3 years and im only 36 years old. i got it from high blood pressure. well now i have no friends and im depressed and my life sucks. im a single person with no job and no life. dialysis sucks and i should just die.” Actual quote from the dialysis_support listserv, March, 2006

  10. Effect of Job Loss on Patients “I've been on hemo for 11 years now. I lost my job at Central Texas College because keeping up with dialysis and my job was just too much. I lost my wife of 22 years and 3 children to another man because I began to have sexual difficulties as a result of renal failure, which by the way, Cialis, Viagra and Levitra just doesn't help.I've developed carpal tunnel syndrome as a result of calcium deposits in the wrists. And then try to live on an SSI payment of $603.00 a month. It isn't easy let me tell you. Since my divorce 7 years ago I have been bouncing between friends. That's no life.” Actual quote from the dialysis_support listserv, August, 2006

  11. Benefits of Work for Patients • Self-esteem • Higher income1 • Health insurance2 • Built-in social outlet • Better physical functioning3 1Insurance Information Institute, www.iii.org 2USRDS Special Data Request, May 20, 2003 3Blake et al. Physical function, employment, and quality of life in end-stage renal disease. J Nephrol 13(2):142-149, 2000

  12. Functioning & Well-being: PCS + MCS scores Mental Component Summary: MCS Physical Component Summary: PCS

  13. Employment and FWB • Employment predicted PCS and MCS in African American CKD patients Kusek et al. Cross-sectional study of health-related quality of life in African Americans with chronic renal insufficiency: The African American Study of Kidney Disease and Hypertension Trial. Am J Kidney Dis 39(3):513-524, 2002

  14. FWB Scores Predict Morbidity & Mortality • 1 Point  in MCS • Mortality rate 0.46% • Hosp. rate 0.23% • 1 Point  in PCS • Mortality rate 0.43% • Hosp. rate 0.43% Lowrie EG et al. Medical Outcomes Study Short Form-36: A consistent and powerful predictor of morbidity and mortality in dialysis patients. Am J Kidney Dis 41(6):1286-1292, 2003.

  15. 50% 50% EGHPs ~ $350 per treatment + 4x meds Medicare ~ $130 per treatment + meds Renal Community Benefits of Work for Providers: Two Dialysis Revenue Streams

  16. Payer Mix & Dialysis Revenues Dialysis Revenue Sources Payer Mix: Community-wide

  17. Clinic Revenue Per Patient/YearMedicare-only vs. Employer Group Insurance

  18. 1-year Impact: Pt. Job Retention vs. Composite Rate • Increased revenue to the renal community of a 2.0% composite rate increase for 377,313† patients: $135 million • First-year revenue to the renal community if previously-working patients kept working*: $183 million *6,922 patients in 2002 were working 6 months prior & not at initiation †2005 projected population assuming 7% growth/year

  19. Job Loss is the RulePatients Age 18-55 at 90 Days Post Initiation, May 1995-June 2001 Data Source: USRDS Special Data Request 2003

  20. How Do We Keep Patients Working?

  21. To Keep Patients Working… • Reach patients early with information • Treat predialysis anemia • Offer work-friendly treatments • Create an expectation that work is possible

  22. Reach Patients Early with Information ? • % of patients who get predialysis education?

  23. How Can Networks Reach Patients Early? • Partner with: • QIOs • Industry • Media • Centers for Disease Control & Prevention • Nephrologists • Voluntary organizations

  24. Treat Predialysis Anemia “Not being able to get up in the morning and be awake— it almost feels like you need another 2 or 3 hours of sleep. And when you get home from work or from a dialysis treatment, you’re not just tired, you’re utterly exhausted. So it’s not like you come home and do something else. You come home and sleep.”

  25. Treat Predialysis Anemia “I finished my garage—I put up some pegboard and some insulation. It took several weekends because I couldn’t do it myself; I had a helper come over. And at 40 [Hct], I could hammer nails. At 36, I couldn’t. I’d take 2 or 3 swats at the nail and then I’d be winded. That’s kind of incredible, isn’t it?”

  26. Treat Predialysis Anemia “I have pretty good energy and I play 9 holes of golf, but when it [Hct] gets below a certain level, my energy is shot. I’ll walk to the mailbox, which is about 50 feet, and I’ll have to stop and rest a while.”

  27. Offer Work-Friendly Treatments Patients Age 18-55 at 90 Days Post Initiation, May 1995-June 2001 Chi Square 247.711756752216, df = 2, p≤ 0.001 Data Source: USRDS Special Data Request 2003

  28. Offer Work-Friendly TreatmentsDialysis “Choices” 2003N = 324,826 USRDS 2005 Annual Data Report, Table D.1

  29. Before their first treatment Patients told of in-center hemo: 89.7% In-center patients told of HHD: 24.6% In-center patients told of PD: 25.1% Patients Not Told All Options: 1997 USRDS 1997 Annual Data Report, USRDS Dialysis Morbidity and Mortality (Wave 2), p. 53.

  30. Among all incident patients in California: Patients not aware of PD: 66% Patients not aware of home hemo: 88% Patients not aware of transplant: 74% Patients Not Told All Options: 2005 Mehrotra R et al, Kidney Int 2005 Jul;68(1)378-90.

  31. What Makes a Treatment Work-Friendly? • Flexible or patient-centered schedule • Fewer symptoms & hospitalizations • Less restricted diet & fluids

  32. No schedule control Strict diet/fluid limits “Dialysis hangover” Other patient deaths Travel to/from clinic Time off work/school No choice of stick-er Travel planning… Putting in needles Dialysis emergencies Order/store supplies Space for equipment Wiring/plumbing Doing treatments Alarms at night Troubleshooting Communicate the Relative Burdens of Dialysis In-Center Home

  33. Physiology of 3x/week Hemodialysis No normal range of ECV, K, Bicarb, P, Ca, pH 6 7 5 4 3 1 2

  34. Physiology of Daily Dialysis Normal range of ECV, K, Bicarb, P, Ca, pH 6 7 5 4 3 1 2

  35. Work-friendly Treatments: CAPD • Training takes 1 week • Patient sets schedule • Preserves residual renal function longer • Transplant is more likely • 1,549 US clinics

  36. Work-Friendly Treatments: CCPD • Abdominal catheter needed • Cycler does exchanges • Possible manual exchange/day • Training: 1-2 weeks • 1,524 US clinics Baxter HomeChoice Fresenius Newton IQ Cycler Baxter HomeChoice Pro Fresenius Freedom Cycler

  37. What Patients Say About PD z "PD and work go well together. I feel fine after doing my exchange. PD is closer to what I want out of life.” “I thought about doing hemodialysis at the dialysis center, but the people looked so wiped out after their dialysis. Plus, I didn't have the time to go in there 3 times a week. I've got work to do!” "I am so afraid of needles. I was only a little kid when I had my first needles and problems with my fistula. If you have to do dialysis, this is the way to go!" Connie Mary Ann Tish Sandoval

  38. Work-Friendly Treatments: Daily Home Hemo • 2-2.5 hrs, 5-7 times/week • Training 2-8 weeks • Trained partner needed • 132 USclinics RenalSolutions Allient Sorbent NxStage System One Aksys PHD

  39. What Patients Say About Daily Home Hemo "I feel so much better. I dialyze seven times a week." “I feel great now! I have no up-and-down days and I feel very similar to when I had no kidney failure.” "People shouldn't live to dialyze but to have a life and do the things they were meant to do." Dadi Ding Jake Casey Bill Peckham

  40. Work-Friendly Treatments:Nocturnal Home Hemo • Done 7-8 hours, 3-6 nights/week • Training takes 4-8 weeks • Trained partner is needed • 127 US clinics

  41. What Patients Say About Nocturnal Home Hemo "Now, I am able to work full time and fit my treatments into my life!” “On in-center dialysis, I felt like I was in prison. I couldn't eat a tomato, eat cheese, or drink milk. Now, you have control. You have your life back.” “People who don't know that I'm on dialysis can hardly even tell that I'm sick." Melissa Bensouda Sarah Taxman Wanda Wilson

  42. How Can Networks Offer Work-Friendly Treatments? • Include information in patient & professional newsletters & meetings • Track & report availability by Network • Gather thought leaders & practitioners US: DHHD US: NHHD

  43. Create An Expectation ThatEmployment is Possible • Share success stories in newsletters or bulletin board displays • Track & report employment data • Include job retention as a topic in meetings & QI initiatives • Offer Life Options Patient Interest Checklists (www.lifeoptions.org)

  44. Conclusions • Job loss is the rule—but job retention benefits patients, clinics, & the government • Half of all ESRD patients are working-age • ESRD Networks can help by: • Reaching patients early with information • Encouraging treatment of predialysis anemia • Offering work-friendly treatments • Creating an expectation that work is possible

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