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Patient/public engagement in sexual and reproductive health service planning. London Sexual Health Programme and Thames Valley University. Prof Nicola Robinson & Ms Ava Lorenc LSHP Forum 13 th November 2009. Patient and public engagement (PPE).
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Patient/public engagement in sexual and reproductive health service planning London Sexual Health Programme and Thames Valley University Prof Nicola Robinson & Ms Ava Lorenc LSHP Forum 13th November 2009
Patient and public engagement (PPE) • NHS advocates user engagement in health & social care. • Planning, development, delivery, evaluation and improvement of health services • Need to identify how best to engage patients in relation to sensitive areas - sexual health – and vulnerable groups. • Challenges: engaging certain groups - women, older, younger, specific ethnic groups, patients without support groups
Benefits of PPE • improves access to services • increases uptake of services • improves patient experience • improves cost-effectiveness • identifies innovative ideas • improves quality and outcomes
Research Questions • What is the most effective way to engage patients and public from a wide range of backgrounds including age, ethnicity, gender and health condition in sexual health services? • What specific gaps exist in current sexual health PPE in London (who is not represented)? • What is the most effective and cost-effective way to mobilise patient/public views to create services which meet their needs? • What are the successful examples of good practice in sexual health PPE.
Preliminary results • 147 PCTs in England sent an email (20/10/09) requesting information on PPE in sexual and reproductive health • So far: • 7 emails were deleted without being read • 7 were undeliverable • 10 out of office • 6 treated as FOI requests (reply in 20 days) • 9 forwarded to other contacts, including PPE manager, commissioning team, teenage pregnancy team, SH team • 37 were read • 11 PCTs have given details of initiatives • 72 yet to read/respond
Examples of initiatives: PCT 1 – rural location Consultation on future SH services. • Draft strategy on website • Letters on accessing strategy sent to councils, MPs, LINks, voluntary/community organisations • Internal staff bulletin to NHS employees • 2 press releases • Local radio interview • Alternative formats of strategy • Interviews with high-risk groups: 16-17 year olds; older people (60 to 75); BME; deprived areas; rural areas and sex workers
Examples of initiatives: PCT 2 - midlands Sexual Health Needs Assessment • literature review • semi-structured interviews with professionals • interviews and consultations with users • epidemiological data Concluded that data needed from • Those with mental health problems • People with learning and/or physical disabilities • Older people (e.g. divorcees, swingers)
Examples of initiatives: PCT 3 – large city Ways to engage young people • Designing poster competition • Facebook (voting on their favourite options) • Workshops in a 6th form college • Targetting radio stations which young people listen to • Comments on website
Examples of initiatives: PCT 4 – large urban centre Large scale questionnaire-based consultation on SH strategy • 5000 responses • Local radio publicity • Event in city centre – 2000 responses • Results on many areas: location and type of service provider; opening times; sources of info/advice; pharmacy role; GP centre; type of services preferred
Examples of initiatives: PCT 6 – greater London area • Liaise with Gay Men’s Project to access ready cohort of gay men to engage • Customer satisfaction surveys • Chlamydia screening office campaigns in conjunction with Boots the chemist in high street venues to attract public • Engage GPs who will engage patients
Other examples • Surveys • Website feedback • Forums (on-line or physical) • Client champions • Twitter • Working with other organisations e.g. Connexions, the Youth Service, Teenage Pregnancy team, Lloyds pharmacy
We need your help • Feedback on methodology of our study • Ideas of who to contact • Complete our survey • Come to our workshop • Send us details of your PPE initiatives • Volunteer to be interviewed Contact Ava : ava.lorenc@tvu.ac.uk 020 8209 4414