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Measuring Health Disparities: Effects of Underlying Quality of Ethnicity Data

Measuring Health Disparities: Effects of Underlying Quality of Ethnicity Data Jay S Buechner, Ph.D. Rhode Island Department of Health 2007 Annual Conference on Assessment Initiative August 22-24, 2007 Assessment Initiative 2007 Eliminate Health Disparities Healthy People 2010 Goal:

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Measuring Health Disparities: Effects of Underlying Quality of Ethnicity Data

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  1. Measuring Health Disparities:Effects of Underlying Quality of Ethnicity Data Jay S Buechner, Ph.D. Rhode Island Department of Health 2007 Annual Conference on Assessment Initiative August 22-24, 2007

  2. Assessment Initiative 2007 Eliminate Health Disparities Healthy People 2010 Goal: How do we measure progress?

  3. Assessment Initiative 2007 Priorities for RI’s Web Query System

  4. Assessment Initiative 2007 Operational Barriers • Small Numbers • Comparability • Data Quality

  5. Assessment Initiative 2007 Operational Barriers • Small Numbers • Comparability • Data Quality

  6. Assessment Initiative 2007 Operational Barriers • Small Numbers • Comparability • Data Quality

  7. Assessment Initiative 2007 Operational Barriers • Small Numbers • Comparability • Data Quality

  8. Assessment Initiative 2007 Data Quality Issues • Sample Surveys • Self-reported • Non-standard responses • Refusals • Bias • “Registries” • Self-reported? • Missing data • Under-reporting

  9. Assessment Initiative 2007 Ad Hoc Data Quality Study Through Data Linkage • Hospital Discharge Data • “Administrative Data” • Collected/reported by hospital staff • Traumatic Brain Injury Data • Abstracted from medical record • Collected by project staff

  10. Assessment Initiative 2007 HDD Record TBI Record Race/Ethnicity 80.8% 75.0% White 5.1% 5.2% Black 1.2% 1.4% Asian <0.05% 0.8% Native American 6.7% 8.0% Hispanic 5.1% 3.6% Other 1.1% 6.0% Unknown Comparative Race/Ethnicity Distributions HDD Record vs TBI RecordRhode Island, 1996-1999

  11. Assessment Initiative 2007 Correspondence of HDD Record with TBI Record, Rhode Island, 1996-1999 98.5 100 90.4 89.8 88.4 77.3 80 64.7 60 Percent "Correct" on HDD Record 40 15.2 20 5.3 0 White Black Asian Native Hispanic Other Unknown All American Cases Race

  12. Assessment Initiative 2007 Hispanic Surname Study, RI Cancer Rates • From Bureau of Census: • List of 639 “heavily Hispanic” surnames • Apply to: • RI Cancer Incidence (Males) • RI Cancer Deaths (Males, Females)

  13. Assessment Initiative 2007 Hispanic Male Cancer Cases, Rhode Island, 1989-1998 80 Method 70 Combined Surname 60 Reported 50 Number of Cases 40 30 20 10 0 1989 1990 1991 1992 1993 1994 1995 1996 1997 1998 Year of Diagnosis

  14. Assessment Initiative 2007 Recommendations/Suggestions • Establish a data collection policy • Evaluate reported data on race and ethnicity regularly • Establish and support improved data collection

  15. Jay Buechner Chief, Center for Health Data & Analysis 401.222.5115 jay.buechner@health.ri.gov www.health.ri.gov

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