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KIDS GEORGIA ( K ids and Families I mpacting D isease through S cience )

KIDS Georgia (Kids and Families Impacting Disease through Science) is an advisory group focused on improving medical innovation for children. It is sponsored by the American Academy of Pediatrics and collaborates with local hospitals, schools, and other partners.

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KIDS GEORGIA ( K ids and Families I mpacting D isease through S cience )

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  1. KIDS GEORGIA(Kids and Families ImpactingDiseasethroughScience) Child Life Department: June 17th, 2015

  2. What is KIDS? • KIDS is an advisory group of children, adolescents and families focused on understanding, communicating and improving the process of medical innovation for children. • KIDS is sponsored by the American Academy of Pediatrics (AAP) Section on Advances in Therapeutics and Technology (SATT) in collaboration with local AAP Chapters, children’s hospitals, local schools and other partners.

  3. INTERNATIONAL CHILDREN’SADVISORY NETWORK International • Young Person’s Advisory Groups (n=6) • United Kingdom • Liverpool • Birmingham • London • Bristol • Nottingham • Scotland • KidsCAN • Vancouver • In development • KIDS Lyon (France) • Italy (Rome) • Spain (Barcelona) • Under consideration • Australia, Germany, Toronto United States • KIDS Current • Connecticut • Kansas City • Utah • Ohio • Georgia • KIDS In development • New Jersey • KIDS Under consideration • Illinois • Indiana • Michigan • Texas • Washington, DC

  4. What is ICAN? iCAN is a worldwide consortium of KIDS Teams, Young Person’s Advisory Groups (YPAGs), and similar organizations working together to provide a voice for children and families in pediatric medicine through synergy, communication, and collaboration.

  5. ICAN OBJECTIVES

  6. KIDS Membership • Children ages 8 to 18 years* • Past experience with a clinical trial, or • Experience using hospital services, or • Some knowledge of taking medicine, or • Interest in medicine and/or research, or • Parents/guardians of such children *Consideration given to younger Team Members on case-by-case basis • Current Membership: • >50 Members + parents • 60% with medical condition, 40% healthy with interest in medicine/research • 60% membership attendance, 80% executive board • Executive Board and Junior Board

  7. What Do We Do? • Learn about research that improves the health and well-being of kids • Help researchers with their projects • Suggest ways that research in kids could be done better • Attend and participate in educational conferences • Interact with companies and scientists studying things that will help kids • Help start other KIDS Teams in the US and in other countries and share ideas…and lots more!

  8. 1st KIDS GA Meeting

  9. 2nd KIDS GA Meeting

  10. 3rd & 4th KIDS GA Meeting Virtual Reality Lab & Engineering Lab BME Lab, 3-D Printing Lab, & Capstone Design Expo

  11. 5th KIDS GA Meeting June 13th, 2015

  12. For More Information PLEASE CONTACT Stephanie Meisner, RN, BSN, CCRP Edress Darsey, PharmD Linda Kelly, MD kidsgeorgia@icanresearch.org http://www.kidsgeorgia.org/

  13. www.icanresearch.org info@icanresearch.org @icanresearch ICAN Research @icanresearch

  14. Thank you to our Supporters:

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