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FOLLOW UP IN THALASSEMIA CLINIC. Presented by: Dr. Afsana Jahan (PGT) Dr. Aditi Baruah (MD); Dr. P. Bishwanath (MD) Department of Paediatrics Assam Medical College & Hospital, Dibrugarh. Introduction.
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FOLLOW UP IN THALASSEMIA CLINIC Presented by: Dr. Afsana Jahan(PGT) Dr. Aditi Baruah (MD); Dr. P. Bishwanath (MD) Department of Paediatrics Assam Medical College & Hospital, Dibrugarh
Introduction • Thalassemia is the commonest chronic haematological disease needing repeated blood transfusion. • North-East specially Assam is a reservoir of abnormal haemoglobins & also thalassemia because of ethnic diversity of the inhabitants. • Present thalassemia clinic was established in April’2005, AMCH, Dibrugarh where regular follow-up of thalassemia pateints are done.
Aim of the Study To study the follow-up cases of haemo-globinopathy with special reference to thalassemia in thalassemia clinic
Materials & Methods • Place of Study : Thalassemia clinic, AMCH • Period of Study : May’2005 to Oct’2007 • Study universe : 50 diagnosed and registered cases of Haemoglobinopathy • Selection criteria : Cases of Haemoglobinopathy diagnosed by HPLC.
Problems in Thalassemia clinic • Family study and convincing parents and relatives for necessity of the test. • Irregular follow-up visits. • Irregular blood transfusion • Lack of voluntary blood donation. • Cost of filters and chelation therapy limits their use. • Cost of different laboratory tests.
Need of the HOUR! • Public awareness. • Education of health professional. • Antenatal diagnosis. • Emphasis on conventional treatment in particular chelation in view of its high efficacy. • Cure of the disease with increasing possibility of bone marrow transplantation and gene therapy. • Concrete support for achieving high standard for management of thalassemia in this part of Country.
Conclusion Thalassemia clinic is playing an important role in making thalassemia a preventable, manageable and curable disease in prospect of high incidence in this region.
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