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PILOTING RANDOM SAMPLING TO DIVERSIFY A COMMUNITY REGISTRY AND BIOREPOSITORY: CHANGING THE LANDSCAPE FOR PARTICIPANT REC

PILOTING RANDOM SAMPLING TO DIVERSIFY A COMMUNITY REGISTRY AND BIOREPOSITORY: CHANGING THE LANDSCAPE FOR PARTICIPANT RECRUITMENT.

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PILOTING RANDOM SAMPLING TO DIVERSIFY A COMMUNITY REGISTRY AND BIOREPOSITORY: CHANGING THE LANDSCAPE FOR PARTICIPANT REC

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  1. PILOTING RANDOM SAMPLING TO DIVERSIFY A COMMUNITY REGISTRY AND BIOREPOSITORY: CHANGING THE LANDSCAPE FOR PARTICIPANT RECRUITMENT L.B. Bouk1, P.B. Nunes1, M. Cornish1, M. Smerek1, K. Ellis1, J. Tenenbaum1, A. Dunham1, R. Dolor2, V. Christian1, R. Califf1, L.K. Newby2 1Duke Translational Medicine Institute; 2Duke Department of Medicine The MURDOCK Study Community Registry and Biorepository is working to enroll 50,000 (current ~10,400) adult residents whose annotated biological samples and data can be accessed for –omic, population, and epidemiological studies. It is critical that the recruited cohort be representative of the local population with selection of a relatively unbiased population-based sample. Methods Recruit adult volunteers 18 years and older in designated geographic region of North Carolina to participate in a community registry and biorepository. Random samplings of households (Pilots 1 and 2) recruited participants in eligible zip codes over a 12-month period to provide insight into the feasibility of methods for a full representative sample of the population (N=15,000 individuals from ~7500 households). One hundred households were targeted in each pilot effort to test outreach approaches, staffing models, marketing techniques and the role of door-to-door visits in representative sample recruitment. Individuals in all randomly selected households were given the opportunity to learn more about the study, schedule a visit or enroll on-site in their homes. Outcome: % of households interested (agreed to review study materials), not interested, unable to contact, or from which at least one participant was enrolled. DiscussionOur pilot random sample studies showed that traditional techniques require refinement and more participant-directed approaches are needed to improve the efficiency of random sample recruitment before a full-scale population random sampling of households is undertaken. Applying ambassador feedback and lessons learned, Pilot 3 is now underway and is targeting two distinct neighborhoods and employing organized MURDOCK Study sponsored community events, increased visibility of yard signs and new marketing materials. The MURDOCK Study is funded by the David H. Murdock Institute for Business and Culture and the Duke CTSA grant(UL1TR001117). • www.murdock-study.org

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