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Congenital Heart Disease...How my role can support you and your family

Congenital Heart Disease...How my role can support you and your family. My background. Catherine Michaelides I am a qualified nurse Trained for 3 years in B elfast in adult nursing Moved to London and worked for 10 years in all different specialities.

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Congenital Heart Disease...How my role can support you and your family

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  1. Congenital Heart Disease...How my role can support you and your family

  2. My background • Catherine Michaelides • I am a qualified nurse • Trained for 3 years in Belfast in adult nursing • Moved to London and worked for 10 years in all different specialities. • Worked in general paediatrics for 2 years • Trained in children’s nursing • Moved back to Ireland • Worked in Clark Clinic for 10 years • In this role full time since July

  3. Paediatric Congenital Heart Disease Specialist Nurse

  4. Paediatric Children. A boy or girl from the time of birth until they are adult.

  5. Children • For the purpose of the children’s hospital: • Child is from 0 up until 14th birthday to come to children’s A&E • To see cardiologist who already known to 0-16 in children’s outpatients. • 16+ in adult congenital outpatients in RVH

  6. Therefore I would answer questions up to age 16 and then Jan Gordon the Adult congenital specialist nurse would continue.

  7. CongenitalHeart Disease Is a defect in the structure of the heart or great vessels present from birth

  8. Specialist nurse Someone who has a lot of experience , knowledge or skill in a particular area.

  9. How I know about you • Work with Edith antenatal diagnosis • Talk to the consultants • Meet you with the Dr’s at time of first post natal scan /diagnosis • I hear from you yourself, you contact me • Meet you in CCC as an admission • I am in work 5 days per week • Information stored on a data base

  10. How do I do it? • I am based in the RBHSC • I carry a mobile phone • I have an e-mail address • I am closely connected to The cardiac ward clark clinic • Work very closely with the consultants, doctors physiologists and the staff. I am mostly found in out patients, the ward or the cardiac investigations unit.

  11. How do I support you? • Discuss with you and recognise changes in your child’s condition • On going monitoring ie: regular contact. • I offer advice • Help you to recognise things to worry about and what to do about it. • Reassurance about difference in baby worries and cardiac worries./normal childhood illnesses. • Discuss your child’s condition and refer on to someone else if need be.

  12. Who might I refer on to? Your consultant Dietician CCN’s HV’s Speech therapist Social workers Psychiatrists… Physiotherapist education

  13. What I strive to do. • Expert care • Communication • Information • Professional advice • Teaching • Resource • reliable

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