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A Patient’s View. Huw Ll. Jones. My Illness. I’m Welsh – people tend to think that’s a long term condition! Heart Failure Didn’t know what was wrong with me Wife left – I was always asleep and too boring! Off sick from work Isolated – reduce social contact Only do what you can.
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A Patient’s View Huw Ll. Jones
My Illness • I’m Welsh – people tend to think that’s a long term condition! • Heart Failure • Didn’t know what was wrong with me • Wife left – I was always asleep and too boring! • Off sick from work • Isolated – reduce social contact • Only do what you can
What happened • There is always a hero/heroine • One stop shop diagnosis and management plan • Approved for TH • Next day installation and training • Pulse, weight, exercise – through my TV • Insiprational video and questions
What Changed • I felt supported to manage my health • Confident to do things I though I could not • Informed about what was happening to me • No hospitalisation • Independence
Background • I was a Director of Commissioning of a PCT • I commissioned the TH system • I was the first to use the TH system I commissioned • I now work for the Advanced Digital Institute and for Myself