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My name is not dementia. ________________________________________________________________________________________ alzheimers.org.uk. Carolyn Poppham Board Member ADI Former Trustee of Alzheimer’s Society. ________________________________________________________________________________________

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  1. My name is not dementia ________________________________________________________________________________________ alzheimers.org.uk

  2. Carolyn PopphamBoard Member ADIFormer Trustee of Alzheimer’s Society ________________________________________________________________________________________ alzheimers.org.uk

  3. Graham Browne Ambassador Alzheimer’s Society ________________________________________________________________________________________ alzheimers.org.uk

  4. Andrew Ketteringham Director, External Affairs Alzheimer’s Society ________________________________________________________________________________________ alzheimers.org.uk

  5. ________________________________________________________________________________________________________________________________________________________________________________ alzheimers.org.uk

  6. ________________________________________________________________________________________________________________________________________________________________________________ alzheimers.org.uk

  7. The key quality of life indicators in order of importance • relationship or someone to talk to • environment • physical health • sense of humour • independence • ability to communicate • sense of personal identity • ability or opportunity to engage in activities • ability to practice faith or religion • the absence of stigma ________________________________________________________________________________________ alzheimers.org.uk

  8. In short, a list that almost anyone would compile! ________________________________________________________________________________________ alzheimers.org.uk

  9. Not diminished by dementia ________________________________________________________________________________________ alzheimers.org.uk

  10. Respect, citizenship and inclusion ________________________________________________________________________________________ alzheimers.org.uk

  11. Quality of life defined by the person and their circumstances, not their dementia ________________________________________________________________________________________ alzheimers.org.uk

  12. Many factors outside a person’s dementia impact quality of life – support services should address these wider issues ________________________________________________________________________________________ alzheimers.org.uk

  13. Importance of factors varies a little from different groups (ethnicity and stage of dementia) ________________________________________________________________________________________ alzheimers.org.uk

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