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E-patients and social media

E-patients and social media. Lee Rainie, Director, Pew Internet Project - @ lrainie 10.10.13 Hofstra University. “ Tell the truth, and trust the people” -- Joseph N. Pew, Jr. http://bit.ly/dUvWe3 http://bit.ly/100qMub. Un-Hippocratic.

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E-patients and social media

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  1. E-patients and social media Lee Rainie, Director, Pew Internet Project - @lrainie 10.10.13 Hofstra University

  2. “Tell the truth, and trust the people” -- Joseph N. Pew, Jr. http://bit.ly/dUvWe3 http://bit.ly/100qMub

  3. Un-Hippocratic I SWEAR… I will impart a knowledge of the Art to my own sons, and those of my teachers, and to disciples bound by a stipulation and oath, according to the law of medicine, but to none others

  4. Lisa Kimbell email: “If you're reading this it's because I managed to convince Peter to send it which makes me very happy even tho I'm sure it makes Peter feel uncomfortable.  I'm sending a check out to Oregon today…. Since most of us are far away, we can't do much of that but we can provide some cash to reduce the stress of figuring out how to deal with the day-to-day while they're dealing with something way more important.” Blogger Jessica Lipnack: “… because you are reading this post, you are connected to P+T. Without their pioneering ideas and frameworks, this kind of connection, between you and me right now, would be very different.” Then she quotes Lisa Kimbell’s email text

  5. Networked Individualism More important Differently composed Perform new functions Lubricated by social media

  6. Health care implications Source of caregiving Second opinions Providers as “nodes” Performing in public

  7. But the fundamentals still apply

  8. 3 tech revolutions

  9. Digital Revolution 1: Broadband at home - 70% (+10% more have smartphones) - Internet users overall: 85% Broadband at home Dial-up at home

  10. Digital Revolution 2Mobile – 91% … smartphone 56% … tablets 34% 326.4 Total U.S. population: 319 million 2012

  11. Changes in smartphone ownership

  12. Smartphone ownership by income/age

  13. Mobile health info • 91% of adults own cells • … of them … • 31% get health information • 9% get health text messages • --- • 56% own smartphones • … of them … • 19% have health apps

  14. Health apps • 69% track health indicator for themselves or another • … of them … • 49% of trackers say they keep track of progress “in their heads” • 34% say they track the data on paper, like in a notebook or journal • 21% say they use some form of technology to track their health data – and 7% use an app.

  15. Impact of tracking • 34% of self-trackers say their data collection has affected a health decision • 40% of self-trackers say it has led them to ask a doctor new questions or seek a second opinion • 46% of self-trackers say it has changed their overall approach to health Pew Internet/California HealthCare Foundation survey

  16. Digital Revolution 3Social networking – 61% of all adults % of internet users

  17. 54% of online health searches are conducted on behalf of someone else. • 34% of online adults look at online reviews • 26% in the last 12 months read about or watched someone else’s health experience • 18% have gone online to find others who might share the same health concerns. 80% of online health queries begin at search engines 11% of SNS users; 8% of Twitter users get medical info on the sites

  18. Different sources for different needs

  19. How online searches affect decisions (1) • 60% of e-patients say the information found online affected a decision about how to treat an illness or condition. • 56% say it changed their overall approach to maintaining their health or the health of someone they help take care of. • 53% say it lead them to ask a doctor new questions, or to get a second opinion from another doctor.

  20. How online searches affect decisions (2) • 49% say it changed the way they think about diet, exercise, or stress management. • 38% say it affected a decision about whether to see a doctor. • 38% say it changed the way they cope with a chronic condition or manage pain.

  21. What social networks do for patients: Why physicians can be “nodes” • Attention – act as sentries • alerts, social media interventions, pathways through new influencers • Assessment – act as trusted, wise companion • assess the accuracy of info, timeliness of info, transparency and rigor of info • Action – act as helpful producers/enablers • give people outlets for expression, interpretation of their creations

  22. Health outcomes payoff • Monitoring • Interventions and reinforcement • Skills training – meds/devices • Emotional and social support among peers • “Information prescriptions” • Amateur research contributions – online recruitment, communities and clinical trials

  23. Be not afraid

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