South Carolina Cancer Alliance Creating a State of Hope Our Mission: Reduce the impact of cancer on ALL people in South

1. South Carolina Cancer AllianceCreating a State of HopeOur Mission:Reduce the impact of cancer on ALL people in South Carolina

3. South Carolina Cancer Alliance Coordinating Council Advocacy & Policy Survivor & Family Executive Committee Early Detection Research Patient Care Prevention Committees Communications Membership Finance Specific Workgroups

4. Our Vision: -Bringing together a powerful and diverse network of individuals, communities, organizations, and leaders -Encouraging coordination, collaboration, education & research -Eliminating disparities in access, prevention and care -Advocating for cancer funding and policy change -Increasing use of statistics and community cancer data -Recognizing outstanding programs and services

5. Magnitude of Burden Causes of Death

6. Magnitude of BurdenCancer Mortality in SC

7. What does the SCCA offer you? The Opportunity to: Work together to reduce the burden of cancer Network with others to learn & benefit from their experience Gain knowledge of resources in & out of SC Become a voice for solutions Affect policy change Make a difference in the lives of others

8. Getting involved with a task force Participating in subcommittee or work group Attending quarterly meetings Responding to action alerts Working to implement Cancer Plan objectives in your community SCCA members experience benefits by:

9. Funding for SCCA • Partnered with DHEC to secure and implement the $300,000 CDC Comprehensive Cancer Implementation Grant and fund priority Cancer Plan objectives • Raised $50,000 in private funds in 2004 • Provides staff to coordinate task forces • Awarded $272,000 in community cancer control mini-grants with DHEC

10. Ways of Working Together Networking - exchanging information Coordination - changing based on shared information Cooperation - working “side-by side” to accomplish a desired goal Collaboration – sharing/combining resources, often for the benefit of another partner

11. Advocacy and Policy Early Detection Patient Care Prevention Research Survivor and Family SCCA Task Forces

12. Advocacy and Policy Task Force Dr. Carolyn Reed, Chair Mary Lynn Donovan, Vice Chair Gailya Walter, Coordinator Gailyawalter@yahoo.com 843-869-7660 Goal:Promote legislation and policies to support and improve cancer prevention, education,detection, patient care, and research in South Carolina

13. Advocacy and Policy Subcommittees and Work Groups Medicaid Mary Lynn Donovan, Chair mlfdonovan@bellsouth.net Actively proposes policy changes for the Medicaid program that would expand cancer screening and treatment services Legislation and Advocacy Nancy Cheney, Chair Nancy.cheney@cancer.org Tracks and monitors public policy and legislation related to cancer prevention and control; educates and informs SCCA members, legislators and policy makers

14. Advocacy and Policy Subcommittees and Work Groups Cancer Plan Implementation Jeanne Musgrove, Chair jeanne.musgrove@tenethealth.com Develops, monitors and tracks activities and strategies to implement the SC Cancer Control Plan 2005-2010 Medicaid Breast & Cervical Cancer Treatment Awareness Mary Lynn Donovan, Chair mlfdonovan@bellsouth.net Develops and implements strategies to increase awareness across the state for the new breast and cervical cancer treatment program

15. Advocacy and Policy Subcommittees and Work Groups Clinical Trials Reimbursement Peggy Anthony, Chair anthonml@musc.edu 843 792-1628

16. Early Detection Task Force Dr. Stephanie Brundage, Chair Diane Klebanow, Vice Chair Marylou Stinson, Coordinator mlbstinson@yahoo.com 803-407-3788 Goal:Promote healthy behaviors and environments that reduce the risk of developing cancer among South Carolinians.

17. Early DetectionSubcommittees and Work Groups Cancer Education Guide Work Group Musette Hoeffer, pgfarm@bellsouth.net Diane Klebanow dmklebanow@aol.com Coordinates the work related to the Cancer Education Guide- a community education tool designed to educate South Carolinians about cancer prevention, early detection and treatment Provider Capacity and Professional Education Work Group Donna Simmons, Chair donna.simmons@cancer.org Coordinates efforts to impact provider practice as it relates to the early detection and screening of cancer- to enhance health care providers knowledge about best practices related to the early detection of cancer

18. Patient Care Task Force Dr.Anand Sharma, Chair, Henry Well, Vice Chair Ian Hamilton, Coordinator norian@earthlink.net 803-799-3138 Goal:Reduce barriers to state of the art cancer care in South Carolina

19. Patient CareSubcommittees and Work Groups Indigent Care Ginie Daguise, Chair DAGUISVG@dhec.sc.gov Access and address the cost of indigent cancer care National Treatment Guidelines Dr. Drew Monitto, Chair dmonitto@srhs.com Educate physicians in the use of National Comprehensive Cancer Network (NCCN) guidelines Pain Maribeth Kowalski,Chair mbk-scpi@earthlink.net Establish cancer pain initiative efforts in South Carolina

20. Patient CareSubcommittees and Work Groups Clinical Trials Network Kathy Queen,Chair kqueen@srhs.com Provide education and awareness about cancer clinical trials Transportation Chris Gibson, Chair cgibson@lexhealth.org Identify and address transportation barriers for cancer patients

21. Prevention Task Force Marcous Gardner, Chair Dianne Wilson, Vice Chair Ian Hamilton, Interim contact norian@earthlink.net 803-799-3138 Goal:Promote healthy behaviors and environments that reduce the risk of developing cancer among South Carolinians.

22. Prevention Subcommittees and Work Groups Physical Activity/Nutrition Subcommittee Pansy Yates and Susan Frost, Co-Chairs Works with statewide partners to improve behaviors and policies related to dietary choices and physical activity patterns associated with cancer prevention Tobacco Subcommittee Dianne Wilson, Chair Works with the SC Tobacco Collaborative, DHEC Tobacco Division and many local partners to reduce tobacco use among both youth and adults, and to create and promote policies to eliminate second-hand smoke in SC

23. PreventionSubcommittees and Work Groups Environmental and Ultraviolet Exposure Subcommittee Dottye Wodogaza and Amy Steele, Co-Chairs Works with partners to increase use of protective measures against skin cancer, and is beginning work to provide a balanced perspective of environmental cancer risk in SC Cancer Education Guide Workgroup Musette Hoefer and Diane Klebanow, Co-Chairs Joint effort with the Early Detection Task Force that has been working to revise the original WCC Cancer Education Guide presentation, to develop supporting materials and educational programs related to the Guide, and to host regional trainings across SC so that laypersons and professionals can bring the cancer prevention and early detection messages to their communities.

24. Research Task Force Dr. James Hebert, Chair Dr. Swann Adams, Vice Chair Mackey Richard, Coordinator Richarm@dhec.sc.gov 803-545-3827 Goal:Promote research and policies to support and improve cancer prevention, education, detection, patient care, and research in South Carolina.

25. Research Subcommittees and Work Groups Research Recruitment Subcommittee Dr. John Ureda, Chair Address recruitment issues (barriers, access, representation) in all cancer research studies with particular focus on clinical trials Create culturally appropriate methods (brochures, pamphlets, television ads, etc.) to increase minority awareness and participation in cancer research (clinical trials) Tissue Bank Subcommittee Dr. Bill Butler, Dr. Buckhaults, Camille Washowich Establish a statewide accessible tissue bank for cancer research Develop methods that will enable tissue to be shared across the state for use in approved protocols. Ensure “link-ability” of all data across various sources.

26. ResearchSubcommittees and Work Groups Prostate Cancer Subcommittee Dr. John Ureda, Chair Brings together the various individuals, organizations andinstitutions currently engaged in research, education, training, planning and patient and family care relevant to prostate cancer in South Carolina. Convenes exchange to create a prostate cancer network for information, coordinating, expanding and disseminating programmatic activities and planning and promoting services that address the prevention, early detection, prompt and appropriate treatment and support of patients and their families for all South Carolinians Colorectal Cancer Subcommittee Dr. James Hebert, Chair Those interested in these subcommittees may contact Mackey Richard for more information Richarm@dhec.sc.gov

27. Survivor & Family Task Force Judith DeNoyior and Delores Smith, Chairs Jim Allen, Coordinator Allenj@dhec.sc.gov 843-413-6434 Goal:To give cancer patients, survivors and families support and information to help connect them with available resources on the local, state and national levels.

28. Survivor & Family Subcommittees and Work Groups Patient Navigator Committee Deidre Young, Chair Works with statewide partners to develop a Patient Navigator program that effectively uses trained individuals to provide information and resources to targeted individuals in such a way as to increase their ability to access, navigate and utilize the health care system and its resources. Comprehensive Resource System Committee Simbonika Spencer, Chair and Lorene Godbold, Chair Works with tha American Cancer Society and other state and national organizations to develop a Comprehensive Cancer Resource System for South Carolina.

29. Survivor & FamilySubcommittees and Work Groups Long Term Survivorship Issues Committee Diane Gluck, Chair Works with state and national organizations to identify and implement programs that enhance the quality of life for cancer survivors and their families in such areas as: Physical, Psychological, and Emotional Wellbeing. Promotion Committee Anthony Coggiola, Chair Works with the marketing departments of SC ETV, regional hospitals, and other health providers to develop a media infrastructure to promote cancer survivorship issues. Currently, this committee is using the upcoming PBS Special, “A Lion in the House”, scheduled to air on SC ETV on June 21-22, to develop a media platform to promote future SCCA Programs. Those interested in these subcommittees may contact Jim Allen for more information Allenj@dhec.sc.gov

30. SCCA Committees Communications Finance Awards Cancer Report Card

31. Communications CommitteeDiane Gluck, ChairGtwinleaf@charter.net Goals and Purpose: • To ensure communication within the SCCA, and between the SCCA and communities • To oversee all written communication about the SCCA and its projects • To develop the SCCA image • To assist other committees with communication needs, when possible

32. Communications CommitteeUrgent Needs We are specifically looking for individuals who have interests, talents or resources related to: • Graphic Design • Website Development • Database Management • Writing and Public Speaking Current Projects: SCCA Annual Report development and dissemination SCCA Cancer Plan promotion SCCA Brochure revision

33. Finance Goals and Purpose: To work with the Treasurer and Executive Committee in preparing and monitoring the budget for the SCCA To ensure that the SCCA has adequate financial resources to accomplish its mission; To develop innovative ways for utilizing resources to expand the capacity of the SCCA

34. Awards Awards- Solicits nominations for and presents annual awards to individuals, groups and organizations that demonstrate excellence in the areas of cancer policy work, early detection, patient care, prevention, research and survivor/family.

35. Cancer Report Card

36. Task Forces Advocacy and Policy Early Detection Patient Care Prevention Research Survivor/Family Issues Committees/Projects/Workgroups Communications Finance Membership Awards Cancer Report Card Cancer Education Guide How you can get involved?

37. 2006 SCCA Meeting Dates Thursday, July 13, 2006 Thursday, October 19, 2006 All meetings will be held at the Columbia Conference Center For more information: www.sccanceralliance.org 1-866-745-6580