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Sleep Disturbance in MS

Sleep Disturbance in MS. Preliminary findings of Questionnaire Survey TiMS meeting 2012 . TIMS Research Working Group: Jenny Freeman, Paula Gardiner, Susan Hourihan, Ewa Johansson-Charles, Kay McDowell, Alison Nock, Helen Rowlands. . To date: Template from last research project

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Sleep Disturbance in MS

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  1. Sleep Disturbance in MS Preliminary findings of Questionnaire Survey TiMS meeting 2012

  2. TIMS Research Working Group:Jenny Freeman, Paula Gardiner, Susan Hourihan, Ewa Johansson-Charles, Kay McDowell, Alison Nock, Helen Rowlands. • To date: • Template from last research project • MDT focus of project • Call for ideas nationally • Topic selected: “Sleep Disturbance” • Literature search to focus research question

  3. Background • Sleep disturbance affects quality of life and is related to ↑ risk morbidity in pwMS • Management can require input from diferent mdt members • Recommended mg’t is incorporated within routine practice • BUT we don’t know what is routine practice by the mdt ....►SURVEY

  4. Timetable (since September !) • Sept 14th • Sept 28th • Oct19th • Nov 2nd • Oct / Nov • Nov 7th • Nov 13-15th • ...Dec 14th • Dec 15-20th • Dec 23rd • Meeting at ION – develop draft 1 (based on literature and feedback MS clinicians) • Pilot of Questionnaire V.1(n = 21) • Finalised amendments to draft 2 • Pilot Questionnaire V.2 (N = 5 • Ethics Approval sought and gained • Spreadsheet designed for input • Survey distributed & collected • Data inputted • Data analysed • Abstract submittted to RIMS

  5. Preliminary findings • Response rate =70% (180 / 256) • Context • Range of settings: • Mdt (73%) • MS (56%) or neurology specialist (28%) • Experienced cohort (43% MS focus > 10 years) • Interventions used (wide range) • Written advice 50% • Fatigue m’gt 16% • Relaxation 24% • Exercise 29% • Typically on an individual basis

  6. Preliminary findings • Is sleep mg’t considered part of role? • 84% said YES • Are you confident with your knowledge? • 10% said YES • Do you use a specific sleep assessment instrument? • 67% do not • 37% unaware that these assessment tools exist • Would you value further training? • 49% would

  7. Thoughts • Provides initial understanding what is happening in current UK practice • Suggests practice variable and specific knowledge may be limited • Verification required • Exploration in more depth required about How and Why?

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