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Healthcare Genetics in the NHS Landscape 1 st Gengage Network Conference June 2009

Healthcare Genetics in the NHS Landscape 1 st Gengage Network Conference June 2009. Dr Mike Winter Medical Director National Services Division. Background. Better Health, Better Care ‘as local as possible as specialist as necessary’ Calman Report National Advisory Group

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Healthcare Genetics in the NHS Landscape 1 st Gengage Network Conference June 2009

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  1. Healthcare Genetics in the NHS Landscape1st Gengage Network Conference June 2009 Dr Mike Winter Medical Director National Services Division

  2. Background • Better Health, Better Care ‘as local as possible as specialist as necessary’ • Calman Report • National Advisory Group • National Implementation Group • Education and Training Group • Public Engagement Network

  3. Genetics in NHS Scotland • National Services Division • Molecular Genetics and Cytogenetics Laboratory Services Consortium • Clinical Genetics – Assessment, Advice, and Access to Specialist Services • National Managed Clinical Networks • Cross Border (UK) referrals • Involvement in Research

  4. Specialist Services complexity/cost/volume NationalScreening 80 services Cross Boundary Risk Share Other National Projects National MCNs £114 million Clinical Quality Equity of access £170 million Clinical Quality Equity of Access

  5. NHS Scotland Genetics Laboratories Consortium • Access to Appropriate Testing • Quality Assurance of Service • Multi-disciplinary / Multi-professional Users Group • Professional support and advice

  6. Clinical Genetics • Local access to high quality Assessment, Advice, and Care across all service • liaison / referral to other specialist centres when clinically indicated • Influence planning of Health Services • Active links with Research

  7. Managed Clinical Networks • Set Standards and Demonstrate improvements in Quality of Care • Involvement of users and carers • Education and Training for service providers and others

  8. Cross Border activity • Recognised list of UK providers of Specialist Gene Tests with agreed referral pathways (no requirement for ‘prior approval’ for most referrals) • Specialist Clinical Assessment / Treatments can be funded as ‘risk share’

  9. Research • All parts of NHS Scotland genetics service involved in gene science, clinical and translational research • NHS Partnerships with both Higher Education and Pharmaceutical industry strong

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