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What is different now?. Growing number of “full” EHR implementations Growing number of CTMS implementations ( CTSA and Cancer Centers ) Growing number of EDW projects for healthcare and research uses …thus, growing need to integrate …thus, growing complexities (and problems)
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What is different now? Growing number of “full” EHR implementations Growing number of CTMS implementations (CTSA and Cancer Centers) Growing number of EDW projects for healthcare and research uses …thus, growing need to integrate …thus, growing complexities (and problems) …but, budgets are shrinking … new drivers forcing integrated operations (management): ACO, CER, Personalized Medicine, ICD-10, NLP, etc.) CRIOs are being starting to become popular, but the role is still not so well defined.
Current state IRB Registries Grants Consented Subjects CTMS Research EDW De-identified Patients IRB Research Identified Patients HIPAA Clinical Trusted Broker Clinical EDW Registries EHR PACS Registries
Desired state IRB Grants Registries Consented Subjects CTMS Research Subject Tagging IND/IDE in use Adverse/Unexpected Events Clinical Data Criteria Matching POC Consenting De-identified Patients Clinical/Research Data Warehouse IRB Research Identified Patients HIPAA Clinical Trusted Broker Registries EHR PACS Registries
The “new guy” CIO vs. CRIO… The “new buzzword” … and, IT vs. Analytics
Registries/Panels/Datasets NLP Data Warehouse Semantic Mgt Reporting Analytics (is this the CRIO?) IT Data Center Networks Support Training Security Applications Data Governance
A few questions, many options… • What is the best model for an optimal co-existence between care and research IT/Informatics? • Governance • Leadership roles • Funding • Intra vs. extramural drivers • Can a single structure (e.g. one EDW, One EHR) represent the variety of interests, priorities, cultures…? One single leadership for all missions?