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Parental Voice in the Recognition of Congenital Heart Disease

Parental Voice in the Recognition of Congenital Heart Disease. Think Heart. 8 children in every 1000 has a congenital heart defect. 50% of those children have to undergo surgery. 88% of them have a one stop surgical procedure. 12% need a series of operations or interventions.

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Parental Voice in the Recognition of Congenital Heart Disease

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  1. Parental Voice in the Recognition of Congenital Heart Disease Think Heart

  2. 8 children in every 1000 has a congenital heart defect. 50% of those children have to undergo surgery. 88% of them have a one stop surgical procedure. 12% need a series of operations or interventions. Each Year between 450 and 500 cases are diagnosed as having a single ventricle heart problem .

  3. Within the West Midlands up to 60% of Complex Congenital Heart Disease is detected Antenatally .

  4. Early discharge • Ductus has not closed. • Cardiac murmurs are still present. • Feeding not established. • Heart rate has not settled. • Oxygen saturations may not have been recorded.

  5. THINK H E A R T National campaign to improve the diagnosis of Congenital Heart Disease after birth.

  6. Observation. Questions. Listen to parent experience. Basic tests.

  7. Heart rate - too fast or slow (normally 100 to 160 beats per minute)?

  8. Energy & Eating - sleepy, quiet, too tired to eat, falling asleep during feeds?

  9. Take a full feeding history. • Is the baby getting hungry? • Do they complete a full feed? • Do they fall asleep during a feed? • Is that sleep a deep one? • Does the baby wake for a feed? • Is the baby putting on weight gradually? • Is their weight gain dramatic?

  10. Arterial Saturation - a blue, dusky or grey colour (normal oxygen saturations 95-100%)?

  11. Respiration - breathing too fast or slow (normally 40-60 breaths per minute)?

  12. Recession Nasal Flaring

  13. Temperature - cold to touch - particularly hands and feet?

  14. Why are they becoming compromised? Foetal Circulation Hypoplastic Left Heart

  15. THINK HEART • Heart rate - too fast or slow (normally 100 to 160 beats per minute)? • Energy & Eating - sleepy, quiet, too tired to eat, falling asleep during feeds? • Arterial Saturation - a blue, dusky or grey colour (normal oxygen saturations 95-100%)? • Respiration - breathing too fast or slow (normally 40-60 breaths per minute)? • Temperature - cold to touch - particularly hands and feet?

  16. Thank You

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