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NPF OVERVIEW Kathleen Gallant National Psoriasis Foundation Trustee Secretary, IFPA

National Psoriasis Foundation. NPF OVERVIEW Kathleen Gallant National Psoriasis Foundation Trustee Secretary, IFPA. Who We Are. Mission – To find a cure for psoriasis and psoriatic arthritis and to eliminate their devastating effects through research, advocacy and education. Who We Are.

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NPF OVERVIEW Kathleen Gallant National Psoriasis Foundation Trustee Secretary, IFPA

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  1. National Psoriasis Foundation NPF OVERVIEW Kathleen Gallant National Psoriasis Foundation Trustee Secretary, IFPA

  2. Who We Are Mission – To find a cure for psoriasis and psoriatic arthritis and to eliminate their devastating effects through research, advocacy and education

  3. Who We Are ▪ Founded in 1968 - Portland, Oregon 40 employees ▪ Governed by Board of Trustees & Medical Advisory Board Funded by individuals and corporations ▪ Patient advocacy organization: Voice of the patient Nation’s leading authority on psoriatic disease Help patients overcome physical and emotional barriers ▪ Focus: Research, Education and Advocacy

  4. Strategic Priorities Strategic Priorities ▪ To increase the Foundation’s development capacity ▪ To increase the Foundation's role as a catalyst for scientific discovery ▪ To accelerate the Foundation’s ability to change conditions and policies that pose barriers to the Mission

  5. Strategic Priorities cont’d. Strategic Priorities ▪ To increase the capacity to effectively manage and treat psoriasis/psoriatic arthritis ▪ To expand the capacity of the Foundation through integrated community-based Divisions

  6. Partnering with Health Care Providers and Patients ▪ Advocacy ▪ Access to Care□Reform health plan policies□ Catalyst for appealing denials□ Policy intervention on emerging trends ▪ Legislation□ PPARCCA Bill □ CDC Patient Registry □ State legislation – phototherapy co-pays

  7. Research Mechanisms: Discovery Grants: Basicscience on disease origins and pathways - Immunology - Genetics - Pathways of tissue damage - Co-morbiditiesTranslational Grants:Bridge to clinical applicationsFellowships: To promote research as a career= funding the “best science”

  8. Key Products How We Partner with Healthcare Providers

  9. Key Products How We Partner with Healthcare Providers

  10. Key Products How We Partner with Healthcare Providers

  11. Key Products How We Partner with Healthcare Providers

  12. Key Products How We Partner with Healthcare Providers

  13. Key Products

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  15. Key Products • Since 2007: • Raised $3 million USD • Over 10,000 participants • FY 2011 = 21 cities

  16. Key Products

  17. Thank you

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