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Which Person has Multiple Sclerosis?

Which Person has Multiple Sclerosis?. (Famous People) ‏. ( Veer ) ‏. Stan Belinda. “I can’t just stop everything, can’t just lay on my bed and be a couch potato. You have to play the hand that’s dealt you.”. (Wolf) ‏. By: Ellis Mendon.

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Which Person has Multiple Sclerosis?

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  1. Which Person has Multiple Sclerosis? (Famous People)‏ (Veer)‏

  2. Stan Belinda “I can’t just stop everything, can’t just lay on my bed and be a couch potato. You have to play the hand that’s dealt you.” (Wolf)‏

  3. By: Ellis Mendon How does Multiple Sclerosis (MS) impact the patient, their relationships, and the community? (MS Society of Canada)‏

  4. What Do you know about MS? (Multiple Sclerosis Society)‏ (Multiple Sclerosis Society)‏

  5. Vocabulary • Auto immune: Caused by auto antibodies or T cells that attack molecules, cells, or tissues of the organism producing them. • Relapse: A reoccurrence of symptoms of a disease after a period of improvement. • Remission: A period of time during a serious illness when the patient’s health improves. • Exacerbation: The appearance of new symptoms or the aggravation of old ones. • Lesion: A hardened and scarred patch that forms over damaged layers of the myelin. (Merriam Webster)

  6. Definition of MS • MS is a disabling and chronic disease of the central nervous system. • It is a chronic disease with multiple reoccurring episodes. • Multiple (affecting multiple parts of the brain and/or spine)‏ • Sclerosis (hardened, scarred patches that form over damages layers of the myelin)‏ (Magill’s Medical Guide 1806-7)‏

  7. Dr. Jean-Martin Charcot (Discovery Health)

  8. Myelin • The fatty substance that surrounds and protects the multiple nerve fibers of the brain and spinal cord. • It is important because it speeds up the signals that move along the nerve fibers. (Magill’s Medical Guide 1806-7)‏ (Health Care)‏

  9. The body starts to attack its own tissue and breaks down the myelin. When the myelin is damaged the nerve impulses to and from the brain are slowed, distorted, and interrupted. The Attack (Conditions & Diseases) (Magill’s Medical Guide 1806-7)‏

  10. Statistics • ~400,000 people in America • ~2.5 million worldwide • Twice as common among women (Hitti)‏ (Worldpress.com)‏

  11. Cognitive Functions (The Ad Collector)‏ • Memory • Abstract reasoning • Verbal fluency • Speed of information processing (O’Connell 10)‏ These are the most common cognitive functions that are affected by MS. “MS interrupts the nerve tracts.” (The Ad Collector)‏

  12. Fatigue Tightness of the muscles Sexual dysfunction Potential paralysis General Symptoms Most Common • Double and blurred vision • Slurred speech • Tingling and or numbness of the limbs • Loss of coordination in limbs • Weakness of the muscles • Bladder and bowel control difficulties (O’Connell 10)‏

  13. Symptoms (Continued)‏ • Many of these symptoms are easily triggered by heat • Symptoms may be mild or severe • Symptoms vary from patient to patient • NO TWO PATIENTS HAVE THE SAME EXPERIENCE (Chang 1807)‏ (Multiple Sclerosis Society)

  14. Symptom Simulation

  15. (Buzzle.com)‏ (Foot-care.org)‏ Tight Waist (Muscle Tightness)‏ (Drop Foot)‏ Heavy Limbs Blurred Vision Tingling of the limbs

  16. What have you learned so far? (Multiple Sclerosis Support)‏

  17. Diagnosis Basic guidelines for diagnosing MS: Must have experienced at least 2 attacks within 1 month apart There must be more than 1 area of damage to the Central Nervous System myelin. Damage to the myelin must have occurred at more than 1 point in time and not caused by any other disease. (How is MS)

  18. Misdiagnosed • Stroke • AIDS • Lyme Disease • Chronic Fatigue Syndrome (Misdiagnosis)

  19. MRI • MRI:(Magnetic Resonance Imaging) Is a machine that produces proton density images and is able to show soft tissue, whereas x-rays are only capable of showing bone. (Word Net)‏ • Can be used to detect damage around nerve fibers in possible MS patients. (Chang 1809)‏

  20. MRI (Perfect Duluth Day)‏

  21. Healthy vs. Damaged (MRI of Multiple Sclerosis)

  22. Main Types of MS Relapsing-Remitting: -The patient suffers many attacks over time, and these attacks occur unpredictably. -The attacks are then followed by remission, which can last months or even years. Secondary-Progressive -Occurs in patients who initially have relapsing-remitting MS, then later grow to develop this more aggressive form. (Chang 1807)‏

  23. Main Types of MS (Continued)‏ Primary Progressive -Most aggressive form (attacks severe and regular in time). -The disease follows a quick course that gradually worsens from the first onset. -Full paralysis may develop within patient in 3-5 years. Progressive (Late onset MS)‏ -Most common in people over 50 (Nearly 10% of patients show first systems after the age of 50)‏ -Quickest deterioration of motor function (Chang 1807)‏

  24. Causes • No definite cause. • Environmental factors • Not scientifically proven to be genetic. (O’Connell 11-12)‏ (Multiple Sclerosis)‏

  25. The Band Theory (Rogues-Racing.com)‏ (Is Multiple Sclerosis Inherited?)

  26. Why Women? • Women are more likely to have a variation of a gene called interferon gamma. • This gene has high levels of protein that can aggravate MS by promoting inflammation and tissue damage. • Interferon gamma is a lot less common among men. (Hitti)‏ (Forms)‏

  27. Treatment (Steroidal Drugs)‏ • NO CURE • Most common form of treatment for minimizing relapses. • Steroidal drugs ease inflammation and are used for relapse treatment. • Many other forms of MS treatment that seek to prolong remissions. (Education.com)‏

  28. What is the most common form of relapse treatment? Medicinal marijuana Steroidal Drugs Diet change Assessment • How many people worldwide have MS? • 4 million • 400,000 • 2.5 million • 10 million

  29. What speeds up the signals that move along the nerve fibers? White blood cells Interferon Gamma gene Myelin Assesment • How many types of MS are there? • 3 • 1 • 8 • 4

  30. My MS Experience • My mom diagnosed ~ 5 years ago • My aunt (mom’s sister) diagnosed ~ 2 years ago • My outside expert Laurie Lee diagnosed ~ 25 years ago MS DOES NOT JUST AFFECT THE PATINET (My family)‏

  31. Do you know an MS Patient? (Bart Binning)‏

  32. The Patient • Difficult for patient to adapt to his or her new restrictions due to MS. • Challenging to come to terms with physical limitations since MS is so unpredictable. • Affects the patient in many different aspects (emotionally, workplace, relationships)‏ (O'Connell 8)‏ (Pubsub)

  33. Affecting Daily Life • Symptoms can make even the most basic activities complicated for a patient (leaving the house, going for a walk with the dog). • MS can change a patients daily life/routine significantly. • The patient needs to make decisions to as to what activities he or she can participate in. (O’ Connell 10)‏ (Healing Moves Foundation)‏

  34. Making Changes (Face Reality)‏

  35. Neurologist • Go to Neurologist to help manage your MS treatment. • Refer you to other specialist. • Crucial to an MS Patient (Promoting)‏ (A Writer’s Desk)‏

  36. MS Nurse Physical Therapist Speech/Language Pathologist Occupational Therapist Essential People Mental Health Professionals Rehabilitation Specialist • Psychotherapist • Neuropsychologist • Social Worker • Counselor (Promoting)‏ (Run With Me)‏

  37. Stress • Stress can trigger and or elevate symptoms very quickly. • Small adjustments made to a patient’s daily routine and living space can have beneficial effects. (Lee)‏ (Impact Factory)‏

  38. The Blame Game • Easy to get caught up in the idea that you are letting your family and friends down, due to a patient’s new restrictions and needs. • Important for a patient to remember that it isn't their fault. (Shadday 59) (Mizozo)

  39. No Distinction • Majority of the time there is no physical distinction • Easy to forget • Important to remember that the person with MS isn’t doing something because they are lazy or don’t want to do something, but because they are limited . (Shadday 59) (Tiny News)‏

  40. Disclosing in the Workplace • Disclosing personal and or medical information in the workplace can be a delicate topic. • Potential discrimination • A supportive work environment =stress reducer • “You can’t unscramble the eggs.” Laurie Lee • Laurie vs. Madeline (BioJobBlog)‏ (Dealing)‏

  41. Common Concerns • How can I expect my employer to be straight with me if I’m not with him or her? • I don’t want people to misinterpret my new levels of energy and enthusiasm with (being lazy, uninterested, and or drunk)‏ • I don’t want to lose my position due to my newly divulged information regarding my diagnosis with MS. (Disclosing)

  42. Disclosing Among Family/Friends • Remembering MS does not just affect the patient • Deciding who they want to tell and what they want people to know and understand about their diagnosis • Everyone handles their own situation differently (Dealing)‏ (Gossiping and Purity)‏

  43. Children & MS • Important for patient to be open with child • Important for child to feel comfortable to talk with patient and ask questions (O’Connell 7/8)‏ (Arvind Kukreti)‏

  44. Mixed Emotions • Children can often experience mixed emotions towards a parent with MS (frustration, loyalty, being supportive, anger, etc.)‏ • The embarrassment of having a parent with MS can often take place in a child’s mind. • MS does not just affect the patient (O’Connell 7/8)‏ (Care2)‏

  45. Growing & Learning • Children and spouses of MS patients often share their newfound: • Strength • Experience • Knowledge (Focus)‏ (O’Connell 7/8)‏

  46. Community Awareness • Not a lot of common knowledge • Lots of misinformation • There are some communities taking great action towards MS awareness. (Café Press)‏

  47. MS Awareness Week • March 14th-20th 2011 (US and UK)‏ • Book Launches & Fundraising • Chat rooms (for existing MS patients to compare stories and ask questions)‏ • MS nurse speakers • Web services (blogs, social networking site, online surveys)‏ • Raising Awareness (Ways)‏ (National MS Society)‏ (MS Awareness)‏

  48. World MS Day • Goal: To raise awareness and mobilize the global MS movement • Motto: “Join the Global Movement. End MS! Take action on World MS Day. Think Globally. Act Locally.” (World)‏ (Triumph of the Spirit)‏

  49. Walk, Bike, Swim MS (National MS Society)‏ (MS Australia) (National MS Society)‏

  50. Perfect World • In a perfect world, MS information would be integrated into health class curriculum. (Flickr)

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