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Supporting carers of patients who are at the end of life in the acute sector

Learn about the initiatives and services provided by the Supportive & Palliative Care Team at Royal Surrey County Hospital NHS Foundation Trust to support carers of patients at end of life. Services include single room accommodations, support for spiritual and emotional needs, counseling, and referrals to hospices.

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Supporting carers of patients who are at the end of life in the acute sector

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  1. Supporting carers of patients who are at the end of life in the acute sector Royal Surrey County Hospital NHS Foundation Trust best care, anywhere

  2. End of Life Care at RSCH • Trustwide initiatives • The Supportive & Palliative Care Team

  3. Hospital is the preferred place of death for many patients • For many people the hospital feels ‘safe’ particularly if they have got to know the staff • A study of 120 patients asked about their preferences at the end of life showed: • “to have pain and symptoms controlled” • “to not be a burden on my family” Were the most important factors associated with a good death.

  4. How do we support carers? • Where possible patients at the end of life are cared for in a single room, this means carers have open visiting and the option to stay overnight if they wish • A recent audit showed 32/37 patients in the final days of life were cared for in a single room. 1 patient did not want to be in a single room • Quiet rooms are also available for sensitive conversations

  5. Support for carers Parking permit Carer passport & carer prescription Information leaflet

  6. Support for carers • Spiritual Care Service – support for patients and carers. This is not just about addressing religious needs • Supportive & Palliative Care Volunteer – pilot project 1 afternoon per week. Someone for carers to talk to, or to sit with patients • Fountain Centre – family support and counselling for patients with cancer

  7. End of Life care Strategy Group • Trustwide group meets every 4 – 6 months • The group has a lay member

  8. The Supportive & Palliative Care Team • Team of Drs and clinical nurse specialists with experience and training in palliative and end of life care • The team work 9-5, 7 days per week • The team accept referrals from any health care professional and encourage the community palliative care teams to inform them when patients are admitted from the community

  9. The Supportive & Palliative Care Team • The team see every patient who is identified as being in the last week/2 weeks of life and review them every day • Patients are cared for with an end of life care plan • The team aim to speak to a carer either face to face or on the telephone every day • The team liaise with relevant community teams and can refer to hospices if this is the wish of the patient and carer

  10. Gaps in the service • Bereavement support – a 6 month pilot service in conjunction with Cruse had limited uptake • On reflection it was not the best way to offer support • We need to consider how to develop this service to best support the needs of carers

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