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Ymchwil cynhwysol gyda phobl ag anableddau dysgu : troedio llwybr yr Holiad-Uron . Inclusive research with people with learning disabilities : the Question-Aires way. 3 dewis neu gontinwwm ? 3 choices or a continuum ? . Ymchwil gyfranogol
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Ymchwilcynhwysolgydaphobl ag anableddaudysgu: troediollwybryrHoliad-Uron. Inclusive research with people with learning disabilities: the Question-Aires way.
3 dewis neu gontinwwm? 3 choices or a continuum? • Ymchwil gyfranogol • Ymchwil rhyddfreiniol • Ymchwil cynhwysol • Participatory research • Emancipatory research • Inclusive research
YmchwilcynhwysolInclusive research • ‘must address issues which really matter to people with learning disabilities, and which ultimately leads to improved lives for them’, • ‘must access and represent their views and experiences’, and reflect • ‘that people with learning disabilities need to be treated with respect by the research community’ (Walmsley & Johnson, 2003: 16).
Tystiolaeth:ymchwilcynhwysol Evidence: inclusive research Relevant research questions Appropriate data collection methods Comprehensive analysis of data Better dissemination of study findings • Cwestiynau ymchwil perthnasol • Dulliau casglu data pwrpasol • Dadansoddiad cynhwysfawr o’r data • Lledaenu canfyddiadau'r astudiaeth yn well (Garbutt et al. 2009;Tuffrey-Wijne & Butler 2009; Bigby & Frawley 2010; Kramer et al. 2010; Turk et al. 2012; O’Brien et al. 2014).
Y neges graiddCore message Dim amdanomhebddon
Sialens / Challenges • Amser i sefydlu a meithrin ymddiriedaeth a pherthnasoedd gwaith effeithiol. • Cyflogi? • Ystyriaethau ymarferol fel sicrhau hygyrchedd (yn gorfforol ac o ran mynediad i wybodaeth) • Mae ymchwil cyfranogol yn gofyn am lawer o amser os am sicrhau cyfranogiad gweithredol. • Addasu systemau - rôl weithredol yn y broses • Pwy sy’n elwa? Time, Payment, Practical issues, Active contribution=Time, Adapt, Who’s benefit?
Meddwl am y cwestiwnmawrThinking about the big question Bywynannibynnol Dewisiadau, Gwrandawiad Independent living Iechyd Choices, being listened to Health
Bwyta’niach Healthy eating
LlwyddiannauSuccess • Cydweithio • Hyder • Blaenoriaethu • Aelodaunewydd • Cyflwyno • Cwrshawddiddarllen • Darllenpapurauymchwil • Hunaniaethgrŵp • Working together • Confidence • Priorities • New members • Conference presentation • Easy read course • Read research papers • Become a group / identity
SialensiauChallenges • Ymrwymiad • Ymchwil • Dysguganeraill • Arddangoseingwaith • Cyflwyniad • Dylanwadueraill • Dweudwrthbobl be da niyneiwneud • Commitment • Research • Learn from others • Show what we’ve done • Presentation • Influence others • Tell others about us
Holiad-UronQuestion-Aires Question-Aires Success Challenges Working together Confidence Priorities New members Conference presentation Easy read course Read research papers Become a group / identity Commitment Research Learn from others Show what we’ve done Presentation Influence others Tell others about us Hopes Motto “It doesn’t matter whether we have a disability we are all different and everyone needs to be accepted for who we are inside and out” Keep going / smile Achieve our aims Move on up Learn about healthy eating May 2013
Arwyddeiriau’rHoliad-Uron The Question-Aires motto • “It doesn’t matter whether we have a disability we are all different and everyone needs to be accepted for who we are inside and out” • Keep going/smile
Ymchwilcynhwysolgydaphobl ag anableddaudysgu: troediollwybryrHoliad-Uron. Inclusive research with people with learning disabilities: the Question-Aires way. Diolch am wrando / Thank you for listening
Cyfeiriadau / References Bigby C. & Frawley P. (2010) Reflections on doing research in the “Making Life Good in the Community” study. Journal of Intellectual & Developmental Disability 35, 53–61. Garbutt R., Tattersall J., Dunn J. & Boycott-Garnett R. (2009) Accessible article: involving people with learning disabilities in research. British Journal of Learning Disabilities 38, 21–34. Kramer J. M., Kramer J. C., Garcia-Iriarte E. & Hammel J. (2010) Following through to the end: the use of inclusive strategies to analyse and interpret data in participatory action research with individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 24, 263–273. O’Brien P., McConkey R. & García-Iriarte. (2014) Co-researching with people who have intellectual disabilities: insights from a national survey. Journal of Applied Research in Intellectual Disabilities 27, 65–75 Tuffrey-Wijne I. & Butler G. (2009) Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis. Health Expectation 13, 174–184. Turk V., Leer G., Burchell S., Khattram S., Corney R. & Rowlands G. (2012) Adults with intellectual disabilities and their careers as researchers and participants in RCT. Journal of Applied Research in Intellectual Disabilities 25, 1–10. Walmsley, J. & Johnson, K. (2003). Inclusive research with people with learning disabilities: Past, present and futures. London: Jessica Kingsley. Wenger E. (1998) Communities of Practice: Learning, Meaning and Identity. Cambridge University Press, Cambridge