Digital Health Workshop 8 February 2018

1. Digital Health Workshop8 February 2018

2. Why we are here How can we support patients in using digital technology to manage long-term conditions?

3. What should we do? Keep an open mind Share what we know Make a plan

4. Themes • Language • Peer support • Show don’t tell • Personal touch • Myth busting • Barriers

5. These three things 1 …………………………………………………………………………………… 2 …………………………………………………………………………………… 3 …………………………………………………………………………………… @GoodThingsFdn@Perfect_Pathway

6. 1 // Defining digital • What does the word ‘digital’ mean? • Why do the words we use matter? • Can we come up with a definition?

7. What does the dictionary say?

8. ‘Using a phone, computer or other technology to make life easier.’

9. 2 // Check the attitude • How do you feel about technology? • How does technology make you feel? • And what about your patients?

10. Be positive Be practical

11. 3 // How digital are you? • How engaged are patients with technology? • What can we do to get them more engaged?

12. Share what you know.One step at a time.

14. 4 // Making it real • What barriers do patients face? • How might technology help patients? • Where can they go for ideas?

15. Jennifer, 76 Jennifer was recently diagnosed with Parkinson’s, which has led to her losing independence. Previously, she had been an organised person with an active social life who enjoyed playing Bridge. Now, Jennifer has had to give up Bridge and often finds it hard to remember things. She worries that she will forget to order her prescriptions or go to GP appointments. Living alone and with no family close by, Jennifer is also concerned about losing touch with people now that she is less able to get around. Because Jennifer’s condition is long-term, she knows that it is likely to change. She wants to understand her condition better and know what to expect as symptoms develop. Jennifer has limited digital skills. She has a mobile phone and an old laptop, but has never used them to access the internet.

16. Other resources Social life Tomo –peer support network and behaviour change tool that helps manage habits that keep you healthy. HealthUnlocked – world’s largest social network for health built on 250 partnerships with UK charities. Big White Wall – community who support each other in a safe and anonymous environment. Umotif – patient-centred data capture platform for modern research. Reminders Research Kit – Apple app for monitoring different conditions. My Therapy App – medications, measurements and exercise reminders, plus print out health dashboards. Skills development Online Centres Network - 5,000+ local community partners who provide specialist training and support to help people improve their lives through digital. Information as condition develops Patient – trusted source of information for both patients and health professionals across the globe. Transforming Digital Health – NHS Digital online tools and services – found in the apps library. Evergreen Life - personal health record app that stores your health information in one place.

17. Other resources Monitoring Amaven – home-based monitoring, personalised exercise and wellbeing programme via online platform. My possible self – self-help programme clinically proven to reduce stress, anxiety and mild-to-moderate depression after just eight weeks. Inhealthcare – smartphone app that enables patients to track, monitor and manage their health remotely. Ieso Digital Health – confidential one-to-one cognitive behavioural therapy delivered using an interactive online service.

18. Imran, 29 He finds the lack of routine frustrating and is struggling with the emotional strain of his condition. However, Imran is determined. He knows his condition has affected his mental health and would like to manage it better. He would also like to start exercising again and return to work. Imran has an old Smartphone, which he uses primarily to call and text family and friends. He does not use social media and does not have a computer at home, but lives near a library. Imran led an active lifestyle before being diagnosed with chronic fatigue syndrome. He can no longer play football with friends and has taken leave from his job. His social life has changed drastically, leaving him feeling isolated. Imran lives alone and needs to see his GP regularly. He is constantly tired and has problems concentrating and remembering simple tasks. As a result, he has missed a number of appointments. The severity of his symptoms change daily and problems sleeping mean Imran’s sleep cycle has become irregular.

19. Other resources Social isolation and depression Pacifica app – psychologist-designed tools based on Cognitive Behavioral Therapy, mindfulness meditation, relaxation, and mood/health tracking. My Brain Solution app – games and training for memory and resilience in stress. Monitoring and activity Lincus Companion app – track your health and learn what works (and what doesn’t) for you. Move More Sheffield – opportunities to get involved in different exercises at all ranges of abilities. Reminders DrDoctor.co.uk – online and text based service to cancel, confirm and change bookings digitally. My Therapy App – can be configured to CFS patients to generate medications reminders and has a built-in health diary.

20. Betty • Started with games • Researches a long-term condition • Books GP appointments

21. Sloan Medical Centre • Piloting digital surgery • Help patients use online resources • Working as a team across disciplines

22. Show don’t tell.

24. 5 // Help yourself • What online services are available to patients? • Where can you talk to your team about technology?

26. Where and how do you communicate with colleagues?

27. Know what’s out there. Share it.

28. 6 // These three things • What three practical steps can you take? • Are there any small changes you can make? • What are you going to do first?

29. These three things 1 …………………………………………………………………………………… 2 …………………………………………………………………………………… 3 …………………………………………………………………………………… @GoodThingsFdn@Perfect_Pathway