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“Healing: The Essential Component of Palliative Care. ”. Miriam Schneider RN, MSN Resurrection Parish Nurse. Shared Statement of Identity. Continuing Jesus’ mission of love and healing today Belief: every person is a treasure every life a sacred gift
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“Healing: The Essential Component of Palliative Care. ” Miriam Schneider RN, MSN Resurrection Parish Nurse
Shared Statement of Identity • Continuing Jesus’ mission of love and healing today • Belief: • every person is a treasure • every life a sacred gift • every human being a unity of body, mind and spirit
Life Challenging IllnessesCenters for Medicare and Medicaid Eligibility for Hospice Care • Cancer not responding to treatment • Diabetes • Heart Disease • Renal Disease • HIV/AIDS • Huntington’s Disease • Liver Disease • Parkinson’s Disease • Pulmonary Disease • Stroke or Coma • Chronic Degenerative Neurologic Disease • Muscular Dystrophy • Myasthenia Gravis • Multiple Sclerosis • Amyotrophic Lateral Sclerosis (ALS) • Adult Failure to Thrive • Non-Specific Terminal Illness (general decline)
Providence Health & Services Palliative Care Definition 2010 Palliative Care is comprehensive, specialized care provided by an interdisciplinary team of patient and families living with life threatening, advanced illness or decline where care is particularly focused on patient and family directed goals of alleviating sufferingand promoting quality of life.
What are the Palliative goals of care? • Expand the concept of healing and hope • Quality palliative care addresses quality of life concerns • The last phase of life provides continued opportunities for positive growth in the face of suffering
Barriers to Quality Palliative Care Realities of Life Limiting Diseases • Failure to acknowledge the limits of medicine • Inappropriate use of aggressive curative treatment • Difficulties with prognostication • Christakis & Lamonte, 2000; • Glare et al., 2003; Vigano et al., 2000
BIOLOGICAL DEATH DIAGNOSIS OF LIFE THREATENING CONDITION OR DEBILITATING ILLNESS OR INJURY DISEASE MODIFYING TREATMENT HOSPICE PALLIATIVE CARE BEREAVEMENT DISEASE PROGRESSION CONDITIONS APPROPRIATE FOR PALLIATIVE CARE MAY OR MAY NOT PROGRESS TO DEATH
What is an Advance Directive? An Advance Directive is a legal document that allows anyone over 18 years of age to: • Appoint a health care representative (agent) and/or • Give a set of instructions for care (in the event the person should lose their decision-making capacity).
An individual does not have to: • Appoint an agent (Part B) • Give instructions (Part C) • One or the other is permitted. • If they do both, the authority of the agent is usually understood to be limited by any instructions.
More than an Advance Directive This is an order for patient’s for whom, because of underlying disease or age, it would not be a surprise if some life-threatening event (cardiac/respiratory arrest, pneumonia, loss of swallow) came about from which the patient would not want to be, or could not be, rescued. What is a POLST?A POLST is a Physician’s Order regarding Life-Sustaining Treatment
POLST Webpage address listed below http://www.ohsu.edu/polst/programs/sample-forms.htm
How you can support compassionate care • Know programs and services that assist caregivers: • Ethics consults • Pastoral Care consults • Palliative Care consults • Hospice consults • Spiritual care • Interdisciplinary teams • Bereavement services • Education opportunities
Care givers need to remember to care for themselves • We want you to strive for excellence in the care you provide for our patients and their families • This is difficult to do if you are not taking care of yourself
BreatheIn under 30 seconds you can begin to recenter your thoughts • Close your eyes • Take a breath in… slowly through your nose • Hold it for two seconds • Slowly blow it out through pursed lips • This breath is for your brain… 20% of the air you breathe puts oxygen directly to your brain
Take a second breath in… slowly through your nose • Hold it for two seconds • Slowly blow it out through pursed lips • This breath is for your muscles, helping you to move smoothly • You now have a clearer mind and a stronger body
Take a third breath in… slowly through your nose • Hold it for two seconds • Slowly blow it out through pursed lips • This breath is just for you for your mind, your body, your spirit • Now you are ready….
Keep breathing..we have 20,000 chances a day take a breath and start afresh • Remember to take time throughout your busy day to practice this simple technique. It heals your mind, body and spirit. Especially when life challenges arise!