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CONNAUGHT HOUSE Do people with Korsakoff Syndrome benefit from supported living accommodation?. Korsakoff Syndrome (KS). KS is a memory disorder caused by lack of vitamin B1 (poor diet, poor absorption)
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CONNAUGHT HOUSEDo people with Korsakoff Syndrome benefit from supported living accommodation?
Korsakoff Syndrome (KS) • KS is a memory disorder caused by lack of vitamin B1 (poor diet, poor absorption) • Classical symptoms- loss of memory (ST), loss of spontaneity and initiative, confabulations, lack of insight, apathy, talkative or repetitive behaviours, unsteady gait when walking, poor hand, finger control • Affects person’s ability to plan & organise Affects person’s ability to live an independent life
Amnesic Syndrome Admission to Northern Ireland Hospitals ICD-10 Korsakoff Syndrome included under the umbrella of Amnesic Syndrome
Connaught House • 5 bedded supported living unit • Opened in June 2004. Data collection began in September 2004. • First facility in Ireland which is specifically aimed at addressing the needs of people with KS.
Overall Objective • Encouraging optimum level of independence through receiving practical help and support in dealing with everyday situations. Doing things with the individual rather than doing things for them For example: Re-discovering old skills lost through and brain damage (alcohol abuse) and lack of use (living situation) Rekindling positive relationships lost through hectic lifestyle
Model of care • Provide a safe ‘alcohol free’ environment • Provide support with all aspects of daily living e.g. regular nutritious meals, personal hygiene, accessing medical services, budgeting & finances • Encourage meaningful daytime activities • Support & encourage family involvement • Encourage social inclusion/ community involvement • Support alcohol abstinence • Memory exercises
Combining daily tasks with pet therapy Taking careof the hens Dinner time for Honey the dog
Activities Memory Exercises “Memory is the diary that we all carry around with us”. (Oscar Wilde 1969)
Activities Rediscovering lost skills and uncovering interests
Evaluation • 3 Year case study based evaluation • Tenant Outcomes • baseline 6 months 12 months • Daily living skills(personal hygiene, household chores) • Quality of life(physical, mental, social) • Depression • Alcohol relapse • Improvements in everyday memory • Family Involvement
Methodological Techniques • Range of standardised questionnaires LSP (Parker et al. 1991) QOL-AD (Logsdon et al. 1999) CES-D (Radloff 1977) • Semi structured Interviews(tenants & staff) • Postal Questionnaire(family members) • Record Analysis(tenant monthly summaries, review notes, incident reporting) • Observation • Informal conversations with staff
Overview of 2 tenants Individual Tenant • Demographics & Background • Outcome from key areas- daily living skills & quality of life General Overview • Alcohol Relapse • Everyday Memory Exercises
Case Study 1: Philip • Age on entry to scheme:38 • Length diagnosed:5 yr • Previous Accommodation:Long Stay Psychiatric Hospital/ 5 years • Co-morbidity:Bi-polar depression
Philip:Daily Living Skills • Feeding hens, hovering his room, helping with meals • Washing & ironing his own laundry • Attending a day centre 2-3 times per week
Philip: Quality of Life • Uses staff for reassurance & support (mood & cravings) • Regular visits from children on a Sunday
Case Study 2: Mark • Age on entry to scheme:57 • Length diagnosed:6yr • Co-morbidity:Brain Injury due to fall • Previous Accommodation:Mental Health Flat Cluster / 4 years
Mark: Daily Living Skills • Overall improvement in personal hygiene and diet • No incidents of drinking • Physical & mental health problems- limited chores & • much help with self care
Mark: Quality of Life • Reluctance to accept support • Higher level of supervision has lead to improved living conditions, general health, personal hygiene
Alcohol Relapse • 1 alcohol relapse • Family- agree with no alcohol policy • Factor in unsuccessful tenancies
Memory Exercises • 2-3 times per week i.e. contact family/friends, social events, financial situation, and meals • Reduction in anxiety and challenging behaviour • Improvements in everyday memory • Evening activities i.e. reminiscing games, quiz
Conclusion Encouraging optimum level of independence through receiving practical help and support in dealing with everyday situations. For more information: www.praxiscaregroup.org.uk Email: christineirvine@praxiscaregroup.org.uk 028 91 727195