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Community-based research: A brief introduction. Randy Jackson McMaster University 20 th International AIDS Conference Melbourne , Australia July 24. 2014. Presentation Outline. What is Community-Based Research (CBR)? Why CBR and Why Now? CBR Principles
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Community-based research: A brief introduction Randy Jackson McMaster University 20th International AIDS Conference Melbourne, Australia July 24. 2014
Presentation Outline • What is Community-Based Research (CBR)? • Why CBR and Why Now? • CBR Principles • Why Academic Community Partnerships
Community-Based Research • A form of collaborative inquiry where diverse partners join efforts and commit to identifying, researching, and providing solutions to complex health inequities • Intended make room for meaningful community participation • Partners can include academics, community people, and policy-makers
Community-Based Research: Guiding Principles • Community Driven • Community Relevance • Equitable Partnership & Collaboration • Capacity-Building • Anti-Oppression Framework • Action Outcomes
Why CBR and Why Now • Traditional research is limited • Community members are asking that research focus on locally identified needs (i.e., nothing about us, without us) • Funding, ethics and community requirements
Why Academic/Community Partnerships? Is research a dirty word? • Researched to Death • Academic Driven vs. Community Relevance • Convenient Data Sources • “Drive-by”, “Helicopter” or “Parachute” Research • Lack of resources to support community participation
Why Academic/Community Partnerships • Enhances community relevance • Diversity (e.g., experience) at the research table • Quality/validity • Meaningfully involves communities • Improves KTE strategies
OCAP: Research in Indigenous Communities Decolonizing and Indigenous methodologies Ownership, Control, Access and Possession™ • Ownership is the collective right to how cultural knowledge, data and information is used/handled • Control is self-determination applied in the research context • Access refers to proprietary right to retrieve, re-analyze, and/or interpret research data at any point • Possession refers to resulting data, findings, and publication