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Anencephalic Donation Possibilities

Anencephalic Donation Possibilities. Breakout Session B. Presenters: Leandra McHargue , RN, BSN, Loma Linda University Medical Center Becky Hill, CPTC, OneLegacy Sarah Grays, RNC-NIC, CPTC, OneLegacy Moderator: Lynn Willis, MHA, UC Irvine Health. Objectives:.

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Anencephalic Donation Possibilities

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  1. Anencephalic Donation Possibilities Breakout Session B • Presenters: • LeandraMcHargue, RN, BSN, Loma Linda University Medical Center Becky Hill, CPTC, OneLegacy • Sarah Grays,RNC-NIC, CPTC, OneLegacy • Moderator: Lynn Willis, MHA, UC Irvine Health

  2. Objectives: • Understand the possible donation opportunities for anencephalic babies • Learn the practical steps that can be taken to help families of neonatal/anencephalic infants

  3. Questions to Run On: What can I do at my hospital to begin helping parents of anencephalic infants incorporate donation into end of life care?

  4. Turning a “No” Into a “Maybe” Anencephalic & Neonatal Donation Possibilities LeandraMcHargue, RN, BSN • Becky Hill, CPTC • Sarah Grays, RNC-NIC, CPTC

  5. Agenda • The past: brief donation history • The present • Why re-examine now? • Colin’s Story • What we learned • Arriana’s Story • Looking to the future

  6. Past: Brief History • 1980s: LLUMC formed an aggressive anencephalic donation program • Baby Gabriel • Focus was thoracic organs • Debates on consciousness and brain death • 1994: AMA recommended use of anencephalic infants as donors pre-death • 1995: AMA suspended that policy

  7. Present: Why Re-Examine Now? • Current possibilities and basic criteria • Liver for hepatocyte cell infusion: Cytonet • Birth weight greater than 2kg • Recovery within three hours of cardiac standstill • En-bloc kidneys: UC Davis • Birth weight approximately 2kg • Intubated at birth, done as DCD recovery • Heart Valves: tissue transplantation • Weight greater than 3.6kg

  8. Present: Why Re-Examine Now? Crossroads of medicine and the desire of these families to donate.

  9. Colin’s Story LeandraMcHargue, RN BSN NICU Bereavement Coordinator Loma Linda University Medical Center

  10. The Perry Family

  11. Colin’s Story

  12. Colin’s Story

  13. Colin’s Story

  14. What We Learned • Education & collaboration • Hospital staff, L&D, NICU, OR • Surgeons and recovering team • Challenges of assessing a donor that has not yet been born • Preparation for possible intubation/kidney recovery scenario Cytonet Liver Perfusion Criteria

  15. Arriana’s Story Sarah Grays, OneLegacy Megan Aberl, Arriana’s Mom

  16. Megan’s Family

  17. Arriana’s Story

  18. Arriana’s Story Arriana was born on December 11 at 2252 to proud parents Megan & Ignacio

  19. Arriana’s Story

  20. Arriana’s Gift Arriana became the 20th anencephalic infant to donate in the US in 2012

  21. Looking to the Future • Families have the desire to donate • Five potential donors in one year • Each baby and hospital team inspired & educated • Future potential: • Pediatric DCD heart: Loma Linda University Medical Center • Organs for research: International Institute of Medicine

  22. Thank You Riverside Community Hospital Providence Saint Joseph Medical Center Loma Linda University Medical Center Kaiser Permanente Riverside Medical Center Riverside County Regional Medical Center

  23. Questions to Run On: What can I do at my hospital to begin helping parents of anencephalic infants incorporate donation into end of life care?

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