1 / 12

Empowering Families Through Support and Education

Mended Little Hearts. Empowering Families Through Support and Education. Your baby has a congenital heart defect. Each year in the U.S., about 40,000 families will hear these words:. Common Reactions. Grief Fear Anger Confusion Guilt

lena
Download Presentation

Empowering Families Through Support and Education

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Mended Little Hearts Empowering Families Through Support and Education

  2. Your baby has a congenital heart defect. Each year in the U.S., about 40,000 families will hear these words:

  3. Common Reactions • Grief • Fear • Anger • Confusion • Guilt • Loneliness--wanting to connect with others who have “been there”

  4. Mended Little Hearts Is There • National program whose mission is to empower families affected by congenital heart disease • Began in 2004 with 2 groups—now has 86 groups in 30 states & DC • Community-based & volunteer-led • Works with hospitals and medical professionals to provide services for families that compliment medical care

  5. Hope, Help, Healing • Peer-to-peer support • Families can connect with others who truly understand because they have similar experiences • Members share experiences to help them find answers to non-medical questions and learn to live with CHD • The Accredited Visiting Program supports families with kids in the hospital

  6. Hope, Help, Healing • Education • Coming soon—the digital Little HeartGuide Parent Resource • Webinars on topics families need • Emails with tools and tips for families • Educational programs in our communities to give families needed information

  7. Hope, Help, Healing • Connection with resources • Local groups connect families with needed resources in their area • National website contains resources to help families care for a child with congenital heart disease throughout his or her lifetime

  8. Hope, Help, Healing • Bravery Bag Program • Bravery Bags are given to families in the hospital • Bravery Bags contain toiletry & comfort items along with educational materials • Families know they are not alone

  9. Hope, Help, Healing • Awareness • National and local CHD Awareness Activities • Rock Your Scar Campaign to empower kids and adults with CHD • Roar ‘N Run Virtual Charity Race • Local group activities

  10. Hope, Help, Healing • Advocacy • Advisors about Family-Centered Care • Promote CHD Research Funding • Promote CHD Surveillance • Support Pulse Oximetry Screening • Support CPR in Schools • Speak on issues that impact our families

  11. THANK YOU!

More Related