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What methodolgy can be used to create an-ethic-of-empowerment?

An ethic-of-empowerment: e-health and healthy ageing Anita Melander Wikman, PhD, Ass.professor Luleå University of Technology. What methodolgy can be used to create an-ethic-of-empowerment?. Research questions for an ethic-of-empowerment.

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What methodolgy can be used to create an-ethic-of-empowerment?

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  1. An ethic-of-empowerment: e-health and healthy ageingAnita Melander Wikman, PhD, Ass.professorLuleå University of Technology

  2. What methodolgy can be used to create an-ethic-of-empowerment?

  3. Research questions for an ethic-of-empowerment What methodology can be used to develop products and services which: • help facilitate a more active role in health care and rehabilitation • sustain autonomous living • enable older people to become fully active participants in healthcare and rehabilitation programs All in cooperation with relevant organisations.

  4. Research contextEIC- E-health and Innovation Centre, LTU • Development and research for Innovative Systems and Services that enable people to remain at home longer while ensuring a high quality of life.

  5. MyHealth@Age(2008-2010) Project 1.Partners 2. Research persons 3. Findings 4. Research design and methodology

  6. Blue Tree Services McElwaine SMART Technologies Swarm teams Tieto Arctic Group IntelliWork Nelilab Research - Healthcare & welfare, ICT and Market • Luleå University of Technology • Norwegian Centre of Telemedicine • University of Ulster, Northern Ireland Fieldtrial • Pensioners organizations • Municipality of Boden and Luleå • County Council of Norrbotten • Municipality of Tromsö • Southern Health & Care Trust, Ulster

  7. Market Older persons and Health and Welfare staff Participatory and Appreciative Action and Reflection Research (PAAR) FormIT Living Lab • End-User • Need • Technology

  8. Anita Melander Wikman; Alec 2012 Research persons in the Swedish part of MH@A 3 older persons with experience of e-health projects 3 older persons from pensioners org. 7 older persons with functional limitations from e.g. stroke, heart disease, Parkinson.

  9. The MyHealth@Age services A mobile phone with three functionalities; • Safety alarm with locator and fall sensor • Prescribed care functionality • A functionality to stimulate social interaction and social networking

  10. Findings from the old persons’ perspective • Safety and freedom of mobility was the most important need. • They learned more about their own health • The system was motivational in being active • The communication and interaction with PT and GP was more easy

  11. The design process was collaborative with space,voice and participation Motivational factors: • The older persons had an interest to better understand the technologies of today and tomorrow • They wanted to contribute as best they could for the god of older people in general.

  12. Methodology A Model for Reflective Participatory Design (RPD) • Participatory and Appreciative Action Research (PAAR) • FormIT Forthcoming publication: Bergvall-Kåreborn, B., Melander Wikman, A. & Ghaye, G. (2012) The importance of space, participation and voice when designing systems with users. Health Informatics Journal

  13. Participatory and Appreciative Reflection and Action PAAR's- 3 goals

  14. Anita Melander Wikman; Alec 2012 FormIT - Three design cycles • Exploring needs and identifying dreams and visions together with older persons • Concept and prototype design • Assessment of the system in use and evaluation of the whole process

  15. A model for reflective participatory design (the RPD model) Bergvall Kåreborn, Melander Wikman & Ghaye Anita MelanderWikman; Alec 2012

  16. Reflective Participatory Design (RPD) • The older participants were real participants in almost all work-packages (not management) • Participants in application writing • Access to information via e-mail • Needfinding – conceptbuilding – system requirements - prototyp testing

  17. Conclusion • ‘Opening up’, ‘widening’, or ‘broadening’ opportunities for elderly people to authentically engage in decisions about their health and care. • Sometimes space for manoeuvre are limited by project deadlines and budgetary controls. • An image of people coming together, to discuss, plan, question, reflect and make decisions is important

  18. Participation • The intention is to go beyond the practice of consultation • Participation is to be more than the taking up of invitations to ‘be involved’ • Participation has to be learned, especially when (or if) those involved are used to being excluded.

  19. CREATING ETHICAL SPACES FOR OLDER PEOPLE • Explaining the ‘rules of the game’ • Positioning older people in project design forums • Agreeing relationships and responsibilities • Physical space – where to meet • The power of the words we use

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