The Future Economic, Health and Social Care Costs of Dementia

1. The Future Economic, Health and Social Care Costs of Dementia 1 March 2011

2. Ian Sissons Munich Health

3. Baroness Sally Greengross Chief Executive ILC-UK

4. Ramon Luengo-Fernandez Health Economics Research Centre Department of Public Health University of Oxford

5. The economic cost and research funding of dementia compared with other diseases Staple Inn Hall - London, 1st March 2011 Ramón Luengo-Fernández José Leal Alastair Gray

6. Cost of illness studies • Provide estimates of the economic burden of health problems • Can be used to inform research priorities: • More research on diseases with the greatest burden • But methods for doing these studies vary • Here, we have used a common approach across several diseases • Up to date estimates • Informs policy makers

7. Objectives • Estimate the economic burden of dementia, cancer, coronary heart disease and stroke in the UK in 2008: • health care costs (hospital, drugs, visits to doctor, etc...) • social care costs (nursing homes, hospices, etc...) • unpaid care from friends and family, and • losses due to premature death or absence from work. • Quantify governmental and charity research funding on each of these four diseases for the financial year 2007/08.

8. Methods – Cost of Illness study • Sources searched: Office of National Statistics, the Department of Health, the Health and Social Care Information Centre, the Department for Work and Pensions (DWP), Hospital Episode Statistics (HES), the Labour Force Survey (LFS), the Annual Survey of Hours and Earnings (ASHE), the HM Revenue and Customs Statistical Office, and the DoH Quality and Outcomes Framework • Also made use of UK published studies following cohorts of dementia patients

9. Methods – Research funding • UK government agencies providing health research funding: • Research councils (e.g. Medical Research Council); • Research agencies from the Departments of Health in E&W, Scotland and NI (e.g. National Institute for Health Research). • UK registered charities funding health research: • Members of the Association for Medical Research Charities • Top 200 charities, in terms of income, listed in the Charity Commission for E&W (about 75% of total income)

10. Results – Economic cost of dementia In terms of health, social and informal care, and productivity losses, the cost of dementia was £23 billion in 2008 Productivity losses £49m <1% Health care costs £1.2bn 5% Social care costs £9bn 40% Unpaid carers £12.4bn 55%

11. Results – Comparisons across diseases Annual costs of dementia (£23bn) are more than cancer (£12bn), heart disease (£8bn) and stroke (£5bn)

12. Results – Health and social care costs When only including costs to health and social care services, dementia also had the highest cost

13. Results – Research funding

14. Health and social care costs and research funding by disease

15. Cost comparisons across Europe

16. Dementia research spending in the EU

17. Conclusions • The estimated economic burden of dementia (£23bn) is far greater than cancer, CHD and stroke • Research spending on dementia and stroke is severely underfunded in comparison with cancer and CHD • Good evidence showing that returns on investing in research are high • More research on dementia could improve the lives of patients and their carers

18. Professor Alistair Burns National Clinical Director for Dementia, Department of Health Professor of Old Age Psychiatry at the University of Manchester

19. Jeremy Hughes Chief Executive Alzheimer's Society

20. Emily Holzhausen Director of Policy and Public Affairs Carers UK

21. The Future Economic, Health and Social Care Costs of Dementia 1 March 2011