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Patients’ perspective Nicola Bedlington, EPF Director

EFPIA Workshop Partnership for Healthcare. Patients’ perspective Nicola Bedlington, EPF Director. Presentation. Background on EPF Working in Partnership – EPF’s approach Examples -Challenges and Opportunities Reflections on the way forward. European Patients’ Forum.

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Patients’ perspective Nicola Bedlington, EPF Director

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  1. EFPIA Workshop Partnership for Healthcare Patients’ perspective Nicola Bedlington, EPF Director

  2. Presentation • Background on EPF • Working in Partnership – EPF’s approach • Examples -Challenges and Opportunities • Reflections on the way forward

  3. European Patients’ Forum • European non-governmental organisation, based in Brussels, set up in 2003 • Umbrella body of currently 45 European disease specific patients’ organisations and national coalitions of patients organisations • More than 150 millionpatientswithchronicconditionsacross EU

  4. Vision, Mission, Influence • High quality, patient centred, equitable healthcare in Europe • Strong and united patients’ voice in EU health policy debates • How ? • EU Institutions – European Commission, European Parliament, EU Council and Presidencies • All stakeholders - Patient group allies, Health Professionals, Insurers, Consumers, Industry, Academia Partnership - leitmotif

  5. Partnership in practice • High Level Pharmaceutical Forum • EPF ‘s follow up with the Commission and all stakeholders • Patient Safety • EU Patient Safety Working Group • Council Recommendation • EUNETPAS Project • eHealth • eHealth User Stakeholder Group • eHealth Governance Initiative • eHeatlh projects

  6. Partnership in practice • European Union Health Policy Forum – over 50 health stakeholders • Innovative Medicines Initiative Stakeholder Group • Joint European Parliament Event with PGEU , the European Pharmacists on patient reporting, September 2010

  7. National level partnership • Capacity Building – Regional Advocacy Seminars • Mobilising our members – joint stakeholder approach ( Romania 2011) • EPF Manifesto ‘ 150 million reasons to act’ • EU Presidency events ( eg Gothenburg 2009)

  8. Facilitating Partnership :Value+ Value + from project to policy • to enable patients to become more involved in EU funded health projects including research projects • for project promoters and coordinator to acquire more skills to enable them to facilitate in practice • a series of policy recommendations look at linking research project outcomes with patient – centred policy development • Comprehensive Directory of Patient Organisations in every EU member state

  9. Reflections • Partnership – critical to move forward on major societal and economic challenges towhich health is central • EPF’s role and responsibility – our strategy • Reactive and proactive • Professional – Equal Partnership • Building Trust – transparency, independence and legitimacy • Prioritising – optimim impact, measurable results ,sharing success • Collaboration with all partners –even reluctant ones • ‘Health in all Policies’ • Focus at both European and National level

  10. More information? www.eu-patient.eu info@eu-patient.eu

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