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Fetal Alcohol Canadian Expertise (FACE) Research Roundtable International FAS Day - Sept 2002. Christine A. Loock, MD, FRCPC Associate Professor, UBC CCSA Board & FAS NAC Member, BC FAS Provincial Medical Consultant,. Pediatrician. The Pediatrician’s Dilemma.
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Fetal Alcohol Canadian Expertise (FACE) Research RoundtableInternational FAS Day - Sept 2002 Christine A. Loock, MD, FRCPC Associate Professor, UBC CCSA Board & FAS NAC Member, BC FAS Provincial Medical Consultant,
Pediatrician The Pediatrician’s Dilemma
Today’s Goals for Research Roundtable • Overview of current Canadian FAS research (Awareness, At-Risk , Affected, Basic Science) • Discuss trends in nomenclature (“FASD”) • Interventions for women at risk • Standardizing FAS diagnosis and reporting (Health Canada) • Telediagnosis • BC’s HSR (Vital Statistics); UW DPN 4 Digit Code ; • Education and Training : UBC Curricula; Provincial Initiatives; March of Dimes CD ROM training • Basic Science : Anti-oxidants; Meconium Screening • BC Initiatives and Recap
Take Home Points • My role in closing today’s Roundtable: • Stand Up, Speak up, Shut up • IT TAKES A COMMUNITY : • Every child needs a family • Every mom needs a mom • Every person needs a community
Guiding Principles • Respect • Understanding • Compassion • Hope
Bottom Line Common Expensive Preventable
FETAL ALCOHOL SPECTRUM DISORDERFetal Alcohol Syndrome (FAS) • Brain • Growth • Facial features “Fetal Alcohol Effects” (FAE) =Partial FAS & Alcohol Related Neurodevelopmental Disorder (ARND)
Prevention requires Coordination Research Intervention Education & Training
PREVENTION STRATAGIES AWARENESS (primary) AFFECTED (tertiary) AT-RISK (secondary)
In the beginning (of our FAS work ) ~ Early 1990’s The Scream, Edvard Munch
“If you drink, don’t screw: or if you screw, don’t drink! MOD~ 1996” Or if you do, please use effective contraception! CL 2002 from Time 2002 Who is at risk?
Who’s at higher risk?: Remember the “10 P’s” ! • poverty • poor prenatal care • poor nutrition and health • poly-drug use • prostitution (sex trade) • parent, partner, peer problems (A&D) • psychiatric concerns ( mood, anxiety, thought disorders) • prior abuse (childhood sexual+/- physical)
“Mother – Baby Diad” Issues around “Mothering” and Substance Abuse
ACCOUNTABILITY AWARENESS AFFECTED AT-RISK
Guiding Principles • Respect • Understanding • Compassion • Hope
Bottom Line Common Expensive Preventable